Canvassing the experience of Australian patients and families affected by general stroke and/or CADASIL regarding post-stroke care: a qualitative study

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A team of clinicians, academics and patient advocates are looking at ways to help support people affected by CADASIL (cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy), especially around the care received following a stroke.

You can participate in two ways.

1) Online survey

The purpose of the online survey is to find out about the health and well-being of people who have had a stroke or a CADASIL-related stroke, and what types of treatment and care they have sought and received. The team is interested in finding out how healthy and well you feel after your stroke, and to what extent the stroke has impacted on your day-to-day life.

If you have had a stroke, please complete this General stroke survey

If you have CADASIL and have had a stroke, please complete this CADASIL stroke survey

2) Interview

If you have CADASIL and have had a stroke, or you cared for such a person, the research team would like to talk to you to learn how your health has been affected, and about your experiences of care.

Your input is valued and a $25 gift card is offered as a token of appreciation for your time.

Contact

If you are interested in participating, please contact Lichin Lim at poststrokestudy@uts.edu.au

On behalf of the research team, thank you for your time and valuable contribution.

Participant information sheets

Online survey for stroke patients (PDF 196 KB)

Online survey for CADASIL patients (PDF 197 KB)

Interview for CADASIL patients (PDF 209 KB)

Interview for carers of CADASIL patients (PDF 191 KB)