Organising my life

Life after stroke can a bit of an organisational challenge.

The amount of time you spend managing your health will increase. There may be a number of doctors involved in your care, as well as other health professionals such as physiotherapists, occupational therapists and speech pathologists.  It can be a job in itself to keep track of everyone’s names, jobs and all your appointments.

If you haven’t had this level of involvement with health and community services before, it takes some time to work out how it all fits together and how to navigate the system. Using a diary to keep track of appointments can be very helpful during recovery. Setting reminders on your phone or using the various smart phone apps can also be a good way to keep track. Take notes during your various appointments, especially about things that need to be followed up.

Fatigue is a very common complaint after stroke, so be realistic and don’t overcommit yourself. This is especially important in the early days, but no less important throughout your longer term recovery. Figure out what is most important to you, and make that the priority. For everything else, learn to say ‘I’m sorry, I can’t at the moment’.

Setting goals can be a really effective way to drive your own recovery. Consider using our goal setting tool, whether your goal is to return to driving, walk your daughter down the aisle or get back to mah-jong. 

Life after stroke can be hard.

You will spend more time dealing with your health.

You will have to see lots of doctors and other people about your health.

It can be hard to remember everyone’s names and what they do.

It can be hard to remember all your appointments.

Tips for remembering

Use a diary to keep track of things.

Set alarms to remind you to do things.

You can use a smartphone for this.

Write down what you need to do.

Fatigue

Most people who have a stroke get very tired.

Don’t try to do too much.

Do the most important things first.

Say ‘No’ to other things.

Goals

Work towards a goal.

This could be:
  • driving the car again
  • going to a family event, like a wedding
  • doing something you really like.
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