Invisible - to who ?

Wednesday, August 28 2019, 1:28PM

Hi everyone,

When I found my way back into the stroke community I took in lots of different ways people expressed how to describe their way of how stroke affected them.

Invisible disability made it's way into the language used.  I listened to how people described their "invisible disabilities". Okay - if that was how it was I wasn't going to question them,  they've been through enough. Identity is important.

But I did question internally - invisible to who? Certainly not to the person living with the injury. I do not say I have invisible anything, it's all in plain sight for me. If my wounds are not visible - maybe it's because I choose not to share as it's too confronting for people or that people aren't looking hard enough. Would people rather watch a fictional show on netflix about trauma because real life is too confronting, I don't know.

With the difficulties people are having with NDIS and stroke, with people still having hospital stays which do not address injury - I wonder would the government rather not acknowledge wounds which aren't visible to them.  Let's just ignore them - maybe they'll go away.  Let's neglect that side of healing. We'll just add to the trauma. If there is something different happening - I'd love to know. Maybe the Royal Commission into Violence, Neglect and Exploitation of People with Disability will bring to light some much needed evidence of this. Evidence which was always there - but not looked at. 

Come have a cup of tea with me and I'll tell you a real story and the images won't be made for easy viewing. They'll be raw, uncomfortable and you'll have to decide whether or not you want to continue.

But I continue - the choice is mine - I continue to be visible.