Observational study and registry – Systematic Profiling in Neurological Conditions

The SPIN Registry

Researchers at Edith Cowan University are looking for people living with neurological conditions to contribute to an ongoing study.

The SPIN Registry is set up as an observational study, consisting of comprehensive assessments. This involves collecting data about your physical status, lifestyle, and biological characteristics. We will use this data to identify and develop new tools to improve the quality of life.

The Registry study is delivered remotely from the comfort of your own home. The researchers will send everything to you, and a cognition assessment will be conducted over a video call.

The registry also serves as the first step to establish your eligibility for studies in the SPIN research program and, should you meet the criteria for trials developed in the future, you would be first in line to be offered the opportunity to participate in any newly developed interventions.

Who can participate?

  • Between 18 and 85 years of age
  • Able to follow written and verbal instructions
  • No recent changes to prescribed medication (if applicable).

What is involved?

Participants will undergo annual assessments. These include memory and thinking measures as well as physical functioning. Participants will also be asked to provide a blood sample and undertake a body composition scan.

Participation in this research program is completely voluntary and you would be free to withdraw at any stage or decline participation in studies.

Find out more on the study website, or complete the online expression of interest form.


Email the research team at spin@ecu.edu.au

Participant information sheet (PDF 414 KB)