Supporting young stroke survivors through engaging messaging: call for advisory group member with lived experience

This study aims to determine how best to improve participation and quality of life for young stroke survivors (under 25 years) while reducing the development of secondary chronic diseases.

Researchers from the University of Tasmania are seeking members with lived experience of young stroke (or their families) for an advisory group. This group will contribute to discussion and documents to guide data collection, e.g., the types of questions the researchers will ask in interviews and surveys.

The study plans to develop and test a technology-based solution.

Advisory group members

The research team are seeking people under 30 who had a stroke when less than 25 years old, or their family member or carer, with experience and interest in advocacy.

People will be invited to attend (virtually) two meetings per year and requested to review documents in between meetings (about 8 hours per year, with a stipend of $50 per hour available). The project runs for 3 years (2022–2025).

For more detail about the role, lease refer to the Advisory Group Terms of Reference (PDF 119 kB)

Contact:

For more information, please contact the project manager, Dr Marie-Louise Bird via email: marie-louise.bird@utas.edu.au