So far off track ....it hurt

Saturday, July 25 2020, 12:58PM

Toni wrote about sewing in a blog this week - it made me think about this.

To look back and think I know exactly where it went in the wrong direction does not phase me - it makes me stronger. 

If I were to think about my discharge from rehab and the significance everyone put on telling me what I needed to do, that I needed to set goals, all delivered in loud sugary voices which hurt my tender ears and heart as I swallowed the unknown and uncertainty of what was ahead - I can see and feel exactly what those times were like.

It seemed to please people if I told them what they wanted to hear and because in no way had I been allowed to express myself/grieve in rehab - telling people what they wanted to hear was all I knew.

So when prompts were made about what I could possibly do once home I listened and wondered what I could say to get people OFF MY BACK! By this time my head hurt, it was soooo sore - like a big bruise, my body hurt. I ached with continual pushing in the wrong direction, exhausted from going to sleep at night with so many unheard griefs, so many good byes to people as I prepared for the possibility of not waking up the next day.

So I agreed to something which seemed to please people while it made me feel soooo sick inside - I somehow said I wanted to learn to sew when I went home, wondering if this would make people get out of my face and let me begin to think about everything which was being ignored in rehab.

I didn't want to learn how to sew at all!!! I had tried that and didn't enjoy it. The balancing act of being aware of my very precarious situation was something I was learning to adapt to - survival in this situation was paramount.

Any wonder I do not use the word "goal" when I think about something I want to achieve - if it works for other people or is a word used to plan projects and systems GREAT! I'm all for whatever works to get people to where they want to go.

So to articulate in a poem what that might have been like for me - I wrote this.

TELL ME HOW?

What if I wasn't able to articulate a goal 

But I was able to think about a priority - that was never seen, because nobody paid enough attention to what I thought.

So somebody decided to set a goal for me

And that priority did not match what goal I was being asked to reach.

How might that make me feel?

What might that look like?

And how disempowered have I been in that moment

By a system which is there to help me "get better"

Because right now I don't care about what diagnosis is on my health record

I want to feel better

I just want to feel better.

Sue xo