Cavernoma on left Pons bleed & issues

Debbi
Debbion May 19, 2026
1 Comment

I have a Cavernoma in my left pons & venal anomaly which have both bled. I can't find much info about any of this.
- where does the blood go?
- I was in Stroke ward until they discovered it was a Cavernoma bleed, why did they suddenly remove me from stroke ward & into a general ward with no information?
- Isn't this a stroke? I still had all the symptoms.

I feel I have fallen through the cracks. There is not much info about this type of bleed, issues, non operational life expectancy etc.

Can you add any other info for me please or links? Dr Google is the only info I have had.

1 Responses
StrokeLine avatar
StrokeLine

Hi Debbi,

 

Thank-you for sharing your experience with the Enableme community. We are sorry to hear about your cavernoma bleed and the difficulty you are having in finding more information.

 

You may find this website helpful in providing more information about Cavernoma - https://cavernoma.org.uk/what-is-cavernoma/

Also, in regards to your question about where does the blood go, this provides good explanation to what happens to the blood in the brain after a bleed in the brain -  https://www.health.harvard.edu/a_to_z/hemorrhagic-stroke-a-to-z

 

We hope this information is helpful for you. If you would like more information, please do not hesitate to contact us on StrokeLine 1800 787 653 or email strokeline@strokefoundation.org.au. We are available Monday to Friday 9am to 5pm AEST. 

 

Best wishes,

 

Strokeline

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