Emotional challenges in stroke recovery

Stroke is a life changing event for survivors and their loved ones. Those affected will experience different and often complex layers of emotions. These feelings can range from relief at surviving and a new appreciation for having a second chance at life, through to more challenging feelings and emotions some of which are described below.

The physical and emotional aspects of recovery are separate but interconnected. Recovery requires consistent work, often at a time when survivors are most depleted, both physically and emotionally.

Overcoming obstacles

There are a number of obstacles that may arise following stroke that can lead to a range of emotional responses. Particular challenges may include:

• Navigating new and previously unknown services and systems.
• Negotiating personal experiences within the health system in order to best meet our own needs and expectations.
• Adjusting to changes in work status.
• Coping with financial changes.
• Managing issues around housing and day to day living.

Grief and loss

Following stroke people can experience a process of grief and loss. It can take time to come to terms with and find acceptance around aspects of life that have changed because of stroke. Some potential emotions experienced may include anger, denial, frustration and sadness. Stroke survivors can experience fears about the future and anxiety or depression is not uncommon.

Strategies for coping

At times the challenges we are facing might seem overwhelming. Looking at the big picture can make it difficult to know where to begin. Some helpful strategies for coping are:

• Break things down into smaller more manageable tasks that can be tackled one at a time.
• Give yourself permission to go through emotional ebbs and flows.
• Be kind to yourself when you are feeling low and recognize that this is normal.
• Remember to acknowledge and celebrate all the small wins in your journey.
• Start each day as a fresh new beginning leaving yesterday’s frustrations behind.
• Seek support from others when you need it.
• Use goal setting to help stay motivated and maintain momentum.
• Take inspiration from others stories.

It’s important to acknowledge our strengths and give ourselves credit for our efforts and successes.

Motivation

Being low in mood can affect our motivation and participation in rehabilitation. Undertaking tasks when we are feeling optimistic and have a sense of self-belief can generate better outcomes which can then lead to further improvement in mood and feelings of success and self-worth. Participating in physical rehabilitation even on the more challenging days can stimulate endorphins and impact our mood positively.

The emotional journey one experiences after stroke is highly individual and dependent on many factors. It can be challenging and complex and seeking the right support is important. The more knowledge and understanding we have about our situation the better equipped we are to deal with challenges as they arise. If you would like to read more about different aspects of emotions following stroke, there are a number of additional resources here on enableme.