Cavernoma on Left Pons in Brainstem Bleed & issues…

May 2026 - Cavernoma in Brainstem - I found a lady on here called Brigatti, who had similar to me back in 2016. But apart from her, no one has heard of it. I couldn't reply to Brigatti unfortunately. My Cavernoma is on the left Pons in my Brainstem. Very similar issues with my eyes but I also have numbness down right of my face, arm & fingers. My balance is bad still after 4 months of rehabilitation & now I also have hyper reflexes in legs & ankles which are causing constant leg temors.
I have had to stop all exercise & rehabilitation until I hear back from the Neurologist.
So feeling disappointed I'm worse than when I started now! Don't know if I've had another bleed yet.
I haven't been allowed to drive for 9 months so far. :(