Fatigue — A Common Bedfellow for Stroke Survivors. How do they overcome its Challenge?

Welcome Thrill Seekers and Fellow Time Travellers to today’s tome, the theme of which many of you may be familiar with – Post Stroke Fatigue,

I am not a medical expert, but I can tell you [from personal experience] that Post Stroke Fatigue is different from normal tiredness- when having a quick Nana nap can refresh you.

It can happen after any type of Stroke, the signs vary and as is the nature of Stroke the signals and symptoms of fatigue vary from person to person

Today we'll hear from Stroke Survivors how they counter the challenge of Post Stroke Fatigue and live with it in their daily lives it's one of the many aspects of Stroke that you can read about on Hints and Hacks on I-REBOUND, The “Everest” in ‘After Stroke Resources in Australia.

Before we enter the course proper, let's hear from the amazing Julie Davey, a member of I-REBOUND’s Consumer Advisory Group \{CAG\} as she outlines the objectives of Hints and Hacks on I-REBOUND.

Once again, a digital posey for Julie, now let’s get the show amovin..Here’s Brooke.

How Brooke Uses 'smart devices' to manage fatigue after her stroke.

Brooke demonstrates using an easy-to-use smart device which can help with mobility impairments.

Helping family members understand post stroke fatigue

Meredith, a member of I-REBOUND’s Consumer Advisory Group, gives some tips to help friends/family members be inclusive of a stroke survivor.

Shannon talks about pause breaks.

Shannon uses Pause Breaks as a way to clear her mind and to recharge. She talks about structuring her day so that she can take a “pause” so she can reduce her mental and physical fatigue.

Managing fatigue when living alone after stroke.

Clive talks about pacing himself and taking breaks when needed.

Gang. These are a few examples on how these amazing survivors met the challenge of Post Stroke Fatigue and how they now cope with the everyday challenges of Post Stroke life

Thrill Seekers and Fellow Time Travellers. These stories are examples of the power of Lived Experience.

As I write these epistles, each time I watch a survivor talk about living with stroke, I'm just blown away by their honesty, sincerity, and their commitment to Giving Back.

It's not a topic that I write about from afar and with a distant emotion. For once I'll talk a little bit about myself.

I’m almost an eight-year Post Stroke Survivor and "I was told that I would never walk again".

After four months in hospital, I came back to the world and like these survivors that you've heard from today and in other epistles of mine I was determined that I would not let the spectre of stroke beat me.

I was determined I would return to as close a normal life as possible, so RESPECT to these group of amazing people.

The Story of I-REBOUND.

Professor Coralie English. University of Newcastle who provided sage and strategic leadership to the I-REBOUND Project, explains the objectives of this truly unique initiative. It has been designed to reduce the risk of subsequent strokes by providing resources for eating well and moving more.

The I-Rebound website has been developed by the Stroke Foundation and the University of Newcastle and co-designed with Stroke Survivors. The website was funded by the Stroke Foundation (using funds from the Nancy & Vic Allen Stroke Prevention Memorial Fund Grant\}.

Launched in November 2022, I-REBOUND has cemented a unique and desired position in the "After Stroke Resource" Landscape- It is achieving an important level of visibility and credibility among its stakeholders/

Keep Moving Towards Enlightenment for that is where the Answers do bide.

My Key Messages.

Stroke Clinicians – Be aware of I-REBOUND, it can be your go to on-line aid for your Stroke Survivor- familiarise yourself with the contents. Both you and Your Survivor will benefit.

Stroke Survivors -- You are not alone, I-REBOUND can be a mighty cog in your Rehab Journey.

Brian A Beh, Stroke Survivor, Advocate and Investigator.

Lived Experience Stroke Researcher

Life Member of the Hopalong Cassidy Fan Club

Poet, Philosopher and Child of the Cosmos

Friend of Israel and The Holy Land

Winner "Improving Life After Stroke" Category

Stroke Foundation of Australia 2021 National Awards.