I am so over this. Every day I drag a leg around that isn't min, I see a hand that isnt mine. I swear too much, my meory is tshit and i walk in stiff. Life is neve ening round of speech OT Neuropsyc
You are lucky , I am in a wheel chair all because of a stroke , my whole right side is paralysed , still get headaches , leg and arm spasms , lost most my sight , hearing and feels like I am wearing a mask , thats not including my breathing trouble and speech and no taste , must admit one thing I like the way the nurses wipe my butt when they get me on and off the loo ..And you complain about your leg trouble .. Anything is better than going to your own funeral , best way is live with it , it might be a pain in the butt but anything is better than the alterative ..
Hi Magellan and Garry, I'm not going to say I get you because we all go through this differently, and it is a daily struggle... I hope that you find the inner strength and resilience each day, every day!
But, yes, there is neglect. In the beginning, I had therapy as an in- and outpatient, but once discharged, I was left to my own devices. And it took me some time to realise that - it was difficult, as I realised that one can't buy determination off a shelve. It took me getting dumped (politely) from work to realise that 's.it hit the fan' and look for other solutions. Yes, every day is a challenge, but, we are still here. Please, take care. Michael R.
Hi Magellan, I can feel your frustration, in your question. How long ago did you have your stroke? I agree with Michael's comment, no two strokes are the same it seems, so we have a very personal and unique experience. You will definately have down days and days where you see the light, which is really normal. I guess if you are having more bad days then good in a week, week after week, it might be helpful to talk with someone, I accessed a psychologist through the brain injury unit that I am a client of. He was very helpful, he would bring me back to a more logical and balanced view of myself as we can go down a bit of a rabbit warren when we are negative on ourselves/situation. Try focusing on the things you can do and also the things you enjoy as I am sure there are still positives in your situation, it is just often your perspective. Sending you all the positive vibes.
I'm beginning to realise that the mind is a powerful thing. It can lead you astray with some horrible dark places and believe me, I've visited many of them. It can also lead you to do things you thought were impossible, like the healing/mending process after a stroke. I had a stroke at 46, right when life was getting interesting. It robbed me of all my extreme sports and being a full-on, hands-on, dad to three impressionable teens. Or did it? Maybe it's saved me from doing something stupid in my extreme sports, like jumping off that 12m cliff on my mountain bike or wreck diving beyond 150m, whilst scuba diving. And instead of being hands-on, like rebuilding cars and 4x4's, maybe I could take the lead by directing and teaching my kids how to perform those tasks. The way I am looking at this whole stroke thing and recovery is, it's like a colourful yellow smiley face Band-Aid over a festering cut. It looks pretty on the outside but underneath it hurts and looks like a...... but at the end of the day that festering wound will heal, what i am learning is, it's all about "time", it won't happen tomorrow or the next day but it will happen. I personally have found it hard not to compare other stroke survivors progress with mine. We must understand that each stroke is different and each journey is different. I am thankful that I've made it through a pretty catastrophic health event, a broken hip, a failed ACL and meniscus and now, facing this whole covid-19 challenge. You know what, we are all bloody heroes if you ask me.
Hi Settten, I'd say you are now a role model for your kids by showing them how to overcome adversity in life! Often, as parents, we forget how kids look up to their parents and learn. Take care!
Hi There , yep it can and is difficult after 2/5 years I am now getting feeling back in my left leg , the pain lets you know you are alive and if its come from useless to feeling I will have that anytime
Also found subtitles on tv a great help in my memory and reading abilities
Life is what you make it