Neuropathic pain - look normal/don't feel normal

Thank you Kath for your extensive, empathetic, to the point and helpful reply!

With kind regards

Robert

Hey Robert,

Here are some more comments for you from the community:

Terri

The hardest part is when you look normal people expect you to be ok I don’t think you are ever normal the brain and your body have suffered a terrible trauma I turned up at my first stroke meeting not long after I had a stroke and they asked me if I was the journalist they were expecting to cover a story on the group I said no I’m here because I’ve had a stroke they kinda laughed and said never guess that proved I looked pretty normal but that group was my lifeline such great friendships were made just be kind to yourself give yourself time I’m sure the people who know you well and who you work with understand your feelings plus don’t be afraid to tell them how you are feeling kindest terri

Melina

Congratulations on your progress ! I understand how you're feeling, my stroke was 2020. I've just started uni this year and yep appear normal. I just make sure I'm kind to myself and work at my pace and rest when needed, and communicate my needs to colleagues and staff so they are aware but have also told them I will tell them when and if I need help.

Duncan

Take your time, it's a marathon not a sprint, don't expect too much from yourself too quickly. You will get there just don't give up.

Brett

Hey mate I had a stroke also which effect Ed my vision I ended up doing three years on a vision based program on my computer this program is called nova vision you do it twice a day six days a week I went from not been able

To see a the tv correctly or read much my vision is now back to beat back to ninety five pertaining the cost is very reasonable with a chub stand to rest your head in I can recommend it hopefully this helps and gives you some hope for the future

Leanne

Congratulations on your achievements- remember to keep caring for yourself- working full time after a stroke is challenging. I found the more tired I was the worse certain symptoms would be - is this the case with the double vision? Can you perhaps discuss with the neurologist or ophthalmologist?

Nicholas

The one thing I had help with was my vision. I got a visit from a specialist at guide dogs Victoria. He taught me scan vision. It was so bloody helpful. Bye the way way do you still work for the same company?

Frank

Mine went away in its own over time

Saran

Hi Diana, thank you for sending me these comments. How come I don't see them myself and that you need to forward? Cheers, Robert

I just wanted to see thanks, to all who responded. I'm still progressing, be it at a slow pace. Tomorrow doing a driver's exam. And yes, I'm working for the same  company. As a matter of fact I'm the CEO of a global company. Very understanding and supportive environment! Double vision is there but is manageable I feel. Neuropathic pain bothers me the most. Going to discus with my neurologist in 2 weeks from now. Also went to advanced rehab centre, and they feel they can help me with my balance. 

Hi Robert,

Good luck with your driving assessment. Let us know if we can be of help with anything.

Would liek to hear mroe about your company. 

D