Hi again now 7months post stroke- getting more feelings like someone pouring freezing cold water down my veins😂but feel normal on outside - but sensations still stiff and numb- not much change in last three months, can i challenge my body anymore?dont know what more i can do!
Hi Lyn,
I know how totally frustrating it is to have symptoms without knowing the cause! Or having symptoms without a cause. I remember that frozen feeling from my early post-stroke days. It caused a panic attack that saw me hospitalised again (just overnight, but still...). Have you seen your neuro? What do they say? Anyone else you can ask to check things out?
Do you try to do yoga or tai chi? I know a few people on here really like the yoga and find it helps, I have begun a yoga practice to see if that helps me. I found tai chi helpful too, particularly early on - less "pretzel moves"! This is the YouTube clip I started with:
I hope you get some answers soon!
All the best,
Kat
Hi Lyn,
Keep on searching for answers, I like what Kat has suggested about Tai-Chi, Yoga etc. Have you started to practice mindfulness or deep breathing?
Your description of freezing cold water being poured down your veins sounds very uncomfortable, do you practice visualisation at all?
I'm just putting out there what helped me. I was an imagination artisit.
Keep in contact with us, I'm so pleased you have somewhere to ask.
Sue :-)
Ta sue.have tried to stay positive but really feeling thats all i have got at moment- is there lows and highs? Feeling worse now than previous months when at repat and qeh,!, is this part of my brain trying to reset?-finding life very hard at moment!
Hi Lyn, it does sound like you are really trying your hardest with what you know. And I am very sorry but I don't know the technical side of what is happening in your brain to give you these frozen feelings.
What do you do that gives you any relief, is there a song or a poem or simply closing your eyes when you are sitting and imagining something which gives you relief?
Do you have anyone to talk to on a regular basis? Or do you write these feelings out?
I did write a poem not so long ago in regards to how I saw early recovery.
EYES WIDE OPEN
Today my eyes were wide open.
And an unfiltered stream of life flowed into my thirsty brain.
I wondered about everything that settled into parched crevasses of my mind.
Like seeing greying pieces of coral light up with colour.
Alive with activity.
Matching this tsunami of stimulation:
Comes noise.
Sounds that settle onto swollen bruised surfaces inside tender ear canals.
Vibrating relentlessly on delicate membrane.
Linking these two normalities of life makes my head hurt.
Then comes the need to say something.
To contribute to life.
I hesitate before continuing boldly.
My contribution.
What will happen to my voice as I respond to life?
I don't know if you follow the Stroke Foundation on Face Book? Lots of good stuff there. Do you read?
Kat has put a blog up about some of the books we found helpful.
My thoughts are with you and you travel this road.
Warm regards
Sue