Hi Jennifer,
I'm sorry to hear about the stress you are under and your husbands stroke. What you describe, the pressures that have slowly accumulated from such a difficult time for the whole family.
The impact is huge - there is no doubt about it.
And then there is the question of what will help? And this of course is different for every family too. Yes there is a lot of changes, a lot of emotion around all those changes.
For us, yes there was lots of confusing times. Something that helped me was not to air our personal issues with every Tom, Dick and Harry who was curious as to "How we were coping."
It took a long time to work this out.
Well meaning people who have your best interests at heart and are asking questions to sometimes satisfy their own curiosity.
Does this make sense?
For me it meant learning to deflect people alot, start talking about flowers or sunshine or what I was cooking for dinner when I did not feel safe to divulge our personal circumstances. And this didn't mean I didn't appreciate where they were coming from.
Have you called Strokeline?
1800 787 653
They may have a more comprehensive plan to talk through with you.
I used to think of three things which had give me some sort of appreciation that day. They can be really small things, they usually were for me.
Assistance with couples communication post stroke in whatever way this works for each couple would be helpful. Gaining each others trust.
I was informed by someone at the Stroke Foundation of a couple who wrote down there thoughts and shared them with each other daily.
That sounds amazing.
Finding support you trust is a good start and you are in the right place for that.
You've done well to even ask the question!
Hugs to you both and your children.
Sue