I have lost my memories - Cherie

Diana
Diana on Wednesday, August 17 2022
2 Comments
I had a CVA in 2015. At a follow up appointment, I was told I had three embolisms.

They did not know if I had one embolism break up or had two other CVAs in the past. I believe I had one in my frontal lobe and two in my parietal lobe on the right side. I have chunks of memories which can’t be prompted by photos or stories.

Do other people experience this? Is this normal? I can remember most things since my CVA but before it, there are only bits and pieces. I am missing a lot of memories of my kids' lives; it makes me upset - I feel like I have failed them.”

Any advice or words of encouragement would by much appreciated.
2 Responses

Its normal I cant remember short time things , any more than a day old and its a blank , best part is you forgot what you bought 3 months ago and it comes as a nice surprise .Best is dont worry about it , after all its been done and you cant change it now .

Hi Cherie

 

I am so sorry to hear about your struggles with memory loss after your strokes. It must be so frightening and upsetting to lose moments that you treasure, so I thank you for having the strength to share your story.

 

It must also be really challenging to feel like you have failed your kids as you have forgotten moments in their lives, however I think it’s important to remind yourself of how far you’ve come. Three embolisms are a big deal and to be able to make new memories with your kids now is so special.

 

Much of the information surrounding memory loss post stroke is regarding short term memories as they are more likely to be an issue than long-term memory loss. Therefore, it may be beneficial to communicate your concerns to your GP and possibly get a referral to a neurologist, if you haven’t already done so, to ensure that there are no new medical issues occurring and for ongoing stroke prevention.

 

You might also like to talk with your GP about a referral to a memory clinic. We can always help you to find one close to you.

 

If you do not already have one, an Occupational Therapist may also be able to help by working with you to develop strategies to live with your memory changes.

 

If you haven’t already been reminded, you are doing great, even with just reaching out for community support. We encourage you to continue to share your story.

 

Do reach out to us at StrokeLine if you need further support at 1800 787 653 or strokeline@strokefoundation.org.au. We are available Monday to Friday 9am to 5pm (AEST).

 

Warm regards,

Karina and Alicia

StrokeLine

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