We're looking for people to be a part of the Stroke Guidelines Project

Jude Czer
Jude Czeron Wednesday, November 7 2018
18 Comments

The Stroke Foundation is calling for expressions of interest from people with lived experience of stroke to join a Consumer Reference Group. Members of the group will provide input in to the content of the guidelines, drawing on their lived experience.

The Stroke Foundation, along with our partner Cochrane Australia, will test a model of 'living' stroke guidelines. This model will ensure new research is included right away rather than wait many months or years. This work is funded by the Australian government over three years.

Who should consider expressing interest?

We are looking for anyone who is a stroke survivor, or carer/family member of a stroke survivor who would like to be involved with shaping national recommendations regarding stroke care. We are seeking people from various locations and experiences (including a mix of stroke survivors and carers/family members).

What is expected?

- Most of the work will be done via email or phone (or videoconferences via internet).

- Training and ongoing support will be provided by the Stroke Foundation.

- Likely to require 5-20 hours of your time over 12 months.

- Appointment on the group is a voluntary position.

- All out of pocket expenses will be covered by the Stroke Foundation.

Response required

To express interest or make an enquiry please get in touch with Peta Bates by November 30, outlining if you are a stroke survivor or carer/family member.

Peta Bates

Living Guidelines Project Coordinator

03 9670 1000

pbates@strokefoundation.org.au

18 Responses
stephen avatar
stephen

Hi Peta

I would like to be involved if I am the type of stroke survivor  you are interested in. I say that because in the 14 months since my stroke,  I was told it was a small bleed,  I have no numbness in any limbs  or aches or pains that I didn't have before the stroke, although I do have a little unsteadiness or balance issues on a daily basis and speech issues that have continued to improve over the last 14 months. Strokes obviously don't happen on one severity level, if 10 was the worst level I would rate mine a 1. If there are any  questions that need to be asked on lifestyle before and after stroke, I would be happy to provide those answers.

Clive avatar
Clive

Peta 

 

i am a survivor and would welcome being involved 

 

regards Clive

Rodsmith avatar
Rodsmith

Hi Peta,

Please register my interest in being involved. I am a Stoke survivor 4 years and counting...Thank You

Rod.... let me know if you need contact information

 

Marilyn avatar
Marilyn

Hi Peta,

I am a 10 year stroke survivor and interested in becoming involved .

Marilyn

Paul avatar
Paul

Greetings!

Paul, my husband and I would love to be part of the Consumer reference group. Paul had a stroke in 2015  which took two thirds of the left side of his brain basisically the expressive and receptive ability. He continues to push himself and make the most of life. Even though he also suffers from seizures now his motivation and strength gives our family so much hope. Cheers Joan

Jude Czer avatar
Jude Czer

Thanks everyone, your interest is really appreciated! Peta will be in touch so keep an eye on your emails.

For everyone else, let me know you're interested by responding to this forum by 30 November.

Best wishes, Jude

 

Ivy avatar
Ivy

Hi Peta,

I am a survivor' daughter. My dad had his brain stroke on 1 July 2018. I would love to be part of the Consumer reference group. 

Best wishes, 

Ivy

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