Partnering in stroke research
Research has a big impact on stroke treatment, and to be effective it should meet the needs of survivors of stroke, their carers and communities.
As a survivor of stroke, a carer or a family member, your lived experience is critically valuable to clinicians and researchers to ensure that research delivers on this aim.
You’re invited to hear about the latest research and project design that partners with people with lived experience of stroke at the upcoming virtual conference of the Stroke Society of Australasia (SSA).
The annual SSA Conference is one of the biggest events on the stroke calendar, where people who work across all aspects of stroke share the latest developments. And now with the current COVID-19 restrictions, it is now accessible online.
This year the program features special sessions involving people with lived experience. On Tuesday 12 October, there is a two-part workshop on the theme of “Making it matter”, featuring co-presentations with people with lived experience.
Then on Wednesday 13 October from 3:30 to 5 pm there is another session, “Making it Matter: How to work effectively in research with people with Lived Experience, which basically teaches researchers how in involve lived experienced people in research.
Virtual attendance is FREE for people with lived experience, but you do need to register by entering your details at this link: https://tas.currinda.com/register/profile/c2d4b139df14
Details of the workshops are below, and you can find out more about the conference at ssastrokeconference.com.au
Rehab and recovery preconference workshop
Making it matter: showcasing working partnerships with people with lived experience
Chairs: Lisa Murphy and Rob Goyen
Session 1 | Time: 930am-12.30pm
- Young Stroke Project (Katherine David and Adrian O’Malley)
- Living guidelines (Kelvin Hill and Kevin English)
- Our Stroke Journey (Luke Hays, Justin Kickett and Rebecca Clinch)
- Our Family’s Stroke Journey (Katherine David, Kylie Facer, Dee Banks and Belinda Stojanovski)
Making it matter: Showcasing research partnerships with people with lived experience
Chairs: Gillian Mason and Rob Goyen
Session 2 | Time: 1.00pm – 4.00pm
1-2pm: Co-design in telerehabilitation (Ingrid Rosenberg, Ian Turbutt, Sue Turbutt, Dina Pogrebnoy and Meredith Burke)
2-3pm Implementation research with people with lived experience (Natasha Lannin, Clive Kempson, Elizabeth Lynch, Fawn Cooper, Maria West)
3-4pm: Listening, learning and connecting: A First Nation’s approach to co-design (Juli Coffin, Vickie Brandy, Lynnette Lackay, Heidi Janssen, Beth Armstrong)