Getting back to myself again

Leesa
Leesaon Sunday, October 8 2017
6 Comments

My name is Leesa and 6 weeks ago I had a haemorrhagic stroke - coming to terms with accepting this is still challenging.  I was at work when I was hit with the "thunderclap" headache they refer to and fortunately my work colleagues realised it was serious and phoned the ambulance and I was given the emergency care I needed very quickly. On paper I wasn't in the high risk category - I am 53, non smoker, didn't suffer high blood pressure, normal weight range etc and at this stage there are still no real answers why this happened.  Maybe a weakness there in my head , surge of blood pressure ? or just "one of those things"?  This is worrying in itself and fretting over it I know is counter productive in may ways. 

I have been incredibly fortunate in that I have no real residual effects from the stroke  as far as mobility, sight and speech and have been able to slowly  return to work and building up my days.  The biggest struggle is the lack of confidence and the anxiousness I feel after such a traumatic experience.  The fear of it happening again, particularly when its not clear how or why it happened in the first place.  I just want to be able to get back to myself again and feel like I used to - I understand this will take time.  I wasn't allowed to drive for six weeks and only these last few days have been able to - that alone gives me some independence.  I have always been very independent most of my adult life. I am so out of my comfort zone and hope as life becomes more normal with the support of my friends, family and gp I will feel like me again.  I welcome the opportunity of this forum and its good to know I am not alone in the way I feel right now.

 

6 Responses

Hi Leesa

 

Welcome, and I am glad you have reached out to us here.  No you are not alone. 

 

It can be a confusing time, this recovery thing and a lot of what you say about, confidence, fear of second stroke and anxiousness.  It all sounds familiar for what many of us experience.  Have you had a look around EnableMe? The Stroke Foundation has a great Website too and also a Facebook Page. Education about all things stroke is helpful.

 

Some ways I find are helpful are to listen to myself and what I need, journaling this, tuning into my feelings, music, mindfulness meditation, exercise, yoga, stretching, humour and getting involved with what makes me happy without putting too much pressure on myself, being involved with forums on EnableMe. 

I know Marcus is into photography and posts beautiful photos, I like writing and therefore write poetry, there are also Facebook sites, Craft after Stroke and Return to Work after Stroke.

 

Many of us here find the road to recovery challenging however like you say with support from those around you, it makes the journey not so lonely. 

 

Congratulations on reaching the point where you are able to drive, yes that independence is wonderful :-)

 

Be kind to yourself.

 

Sue

 

 

 

 

Thanks so much Sue for responding .  I haven't had a real good look on the enable me website as I only stubbled across it this weekend but look forward to getting in to it and discovering the assistance available.  Thank you for your suggestions - I really am open to doing what I can to build back to where I once was and to feel safe and secure again.   Take care Leesa

 Hi Leesa, 

 

I am glad you found EnableMe as there are so many stories about the effects of stoke the survivor and the family. Remember, you are not alone dealing with the mental or physical challenges you will have to face.  

 

Read through the blogs on EnableMe, and I am sure you will find comments that will help you to find what you are looking for.  

 

Like you, I am a 'walking and talking' stroke survivor, so I am one of the 'lucky one.' I know why I had a stroke - heart operation that went wrong - but you will naturally wonder 'Why it I have a stroke?'  I was super fit, swim, bike, walk, hiking and surfing. Why the heart attack?

 

In my situation, it is the gene. I had it. My brothers don't have it.  But that has finished, and now it is time to work out what you can do and what you can't-do and start your rehab. Anxiety and helplessness are part of the package of a stroke. If you find things are becoming difficult, talk to someone on EnableMe, a friend, or your doctor. 

 

Look forward to see you online at EnableMe. 

 

Marcus

Hi Marcus, thanks for your reply. It is very comforting knowing there are people out there who understand how I am feeling.  The more I look through the Enable Me Website and see the resources available I really am finding it helpful and look forward to participating more.  I will follow your suggestions and look through the blogs , thanks again Leesa

Hi Leesa,

 

Welcome to the wonderful EnableMe community. I’m really sorry to hear of your experience, a huge shock for you I imagine.

 

I’m glad to hear you’re finding EnableMe helpful - there have been some great suggestions from Marcus and Sue in their comments above.  

 

You’ve been through a major health event – this in itself can be very traumatic. Talking to your GP, a psychologist, other stroke survivors, and friends and family can be really useful to help you work through everything you’re feeling at the moment.

 

We have a good podcast that covers this fear of a second stroke that stroke survivors often describe: https://enableme.org.au/IFrame?url=https://enableme.org.au/en/Community/Podcasts/Fear-of-second-stroke&returnUrl=https://enableme.org.au/search?query=fear

You might also like to read the following conversation that touches on what you’re describing:

https://enableme.org.au/Community/Forums/View-topic?id=e3ace76f-869e-46f4-bfa5-c67ed377b504

 

Feel free to give us a call on StrokeLine to speak with one of our health professionals – we’d be more than happy to talk through your experience and suggest some strategies (phone 1800 787 653, Mon-Fri 9am-5pm AEST). 

 

Best wishes and take care,

Katherine (StrokeLine)

Hi Leesa, 

 

I just thought that you might find this, 'Healing the Broken Brain: 100 questions about stroke recovery' very interesting. Though there are some chapters you might skip because you don't have any physical problems, nevertheless, it is an excellent book full of stories, ideas of recovery, best diet, and how to prevent another stroke. 

 

I have read a lot of books about survivors and their new world, but this one does give you the answers you are looking forward. 

 

 

 

 

Best, 

 

Marcus

 

 

 

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