Study on experiences with mental health, self-harm, suicide and coping after stroke or acquired brain injury

Thomas G
Thomas Gon Monday, September 7 2026
3 Comments
Hi All,
 
Going through a stroke is hard, and there aren't enough resources out there to help people get through it. I'm part of a team at Monash University that wants to work with survivors of stroke and acquired brain injury to understand what they are going through, and also build freely available resources that can help. We are particularly focused on mental distress, suicidal or self-harming thoughts, self-harm, and coping strategies, and would love to invite anyone on here to check out our page and complete our anonymous survey, if the time is right for you. The survey also asks about experiences with seeking help for these issues, and views on potentially helpful resources that should be available. 
 
We are listed on the Stroke Foundation website here:
 
If you would like assistance completing the survey, please reach out to us at abicoping@monash.edu to arrange a time.
 
And this is the direct link: https://redcap.link/abicopingsurvey
 
The survey will run till the end of this year, and we will release an update with our findings in future too. Thank you for considering, we truly value every response.
 
Warm regards,
Thomas
3 Responses
Nina Wilde avatar
Nina Wilde

Done - I'm wondering why this information hasn't been gathered before? 

 

Thomas G avatar
Thomas G

Hi Nina, I couldn't agree more. Talking about distress, the experience of wanting to die, or wanting to be hurt, have been 'scary' research topics in the past and haven't got much attention. But for some people, this is their reality. It's time to change the narrative around suicide and self-harm, find out what is actually happening, and more importantly, figure out how we can help. Thank you for being a part of this! Really appreciate your time.

Nina Wilde avatar
Nina Wilde

Hi Thomas,

Completeing the questions took time - I did need to step away for a day to process some overwhelming memories.  In the end  being able to recount my version of how and why I felt the distress without anyone questioning me was a healing process.

It was like having a witness to those times of deep deep loss and isolation.

I hope that we are provided with updates on Enableme of how the research is porgressing and results along the way.

Nina

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