Sleep and Fatigue Treatment Study - Seeking Volunteers

Lucy
Lucyon Thursday, April 22 2021
3 Comments

Hi everyone,

 

My name is Lucy and I am coordinating a sleep and fatigue treatment study for individuals who have sustained a stroke or traumatic brain injury, at the Monash Epworth Rehabilitation Research Centre. I have posted on Enableme a few times before, and have been granted the opportunity to meet some wonderful people!

 

We are looking for some more volunteers to take part in our research project. If you have experienced sleep and/or fatigue problems since your stroke, please have a read of our study flyer and see if you might be interested. You will receive an 8-week treatment for sleep and fatigue problems with a Neuropsychologist, in addition to answering some questionnaires about your sleep, fatigue and mood at various time points.

 

Our treatment sessions can be conducted in person at our research centre in Richmond, or we have a tele-health videoconferencing option for those who live outside of Melbourne and across Australia. 

 

If you have any questions or would like to hear more about this study, please get in contact with me at lucy.ymer@monash.edu 

 

Thank you for your time in reading this post.

 

Lucyundefined

3 Responses
Avaniterg avatar
Avaniterg

Thank you for letting us know.

Anna P avatar
Anna P

My husband would have liked to do this - he has had very disrupted sleep since the stroke and also suffers from extreme fatigue. Due to his dyspraxia of speech he was not accepted into the study. I find this really disappointing. He was also not admitted to our local rehab hospital following his acute MCA (left hemisphere) stroke because according to the medical director "he could walk". At private rehab he had a session with a pyschologist but it was a complete waste of time because the session was only set up for a patient who could "talk". Speech loss is a major disability following stroke yet so many of these "services" exclude patients from therapy because they can't speak!!! Sorry feeling very frustrated and that a loss of speech is disregarded. 

Lucy avatar
Lucy

Hi Anna,

Thank you for sharing your frustration. I understand why you are disappointed that we were unable to accept your husband into the study and I apologise that we aren't able to accommodate for loss of speech at this time. Unfortunately in a controlled research study such as ours, we have to adhere to strict inclusion and exclusion criteria in order to determine whether our treatment is beneficial. In the future we hope to expand this criteria so we can assist more individuals with a wide range of disabilities post-stroke. 

Once again, thank you for sharing your thoughts and we appreciate your understanding in this situation. 

Lucy 

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