This is what I experience most days at home, no patience from my dear hubby,does not have the patience when I am trying to explain or speak normally, I often loose chain of thought and I get frustrated and confused...ANY TIPS would be greatly appreciated. It took me three years to be able to put together a sentence.
jan's journeyon Tuesday, April 21 2015
11 Comments11 Responses
Poor Jan. It really is hard. I'm just about 21 years post my bleed and it still is. Sometimes it's good to just go outside and watch nature.
He might then join you and you just leave the last topic and share new experiences. I'm lucky tho, we live amongst nature.
It's very hard for a non-stroke person to understand, think back to your stroke understanding pre-stroke. I know mine was none existant. Educating him through online resources may help, or giving him the task to explain things without using words, this will demonstrate how difficult it is.
You have my sympathy but can't give you an answer. Before I had my stroke I was terrified of people in wheelchairs and others that were obviously stroke victims. I can't explain it, it must have been a fright I had when a very young person. Now as a victim myself I have a completely different viewpoint and go out of my way to chat to them.A lifetime's habits are hard to break. Last week I met a wheelchair victim I have seen around for quite a while, never even nodded to her despite having quick chat to her mother, her caregiver. Within minutes I felt horrified at my omission and got her name from my wife determined that next time we met I would make an effort to communicate.
You have my sympathy but can't give you an answer. Before I had my stroke I was terrified of people in wheelchairs and others that were obviously stroke victims. I can't explain it, it must have been a fright I had when a very young person. Now as a victim myself I have a completely different viewpoint and go out of my way to chat to them.A lifetime's habits are hard to break. Last week I met a wheelchair victim I have seen around for quite a while, never even nodded to her despite having quick chat to her mother, her caregiver. Within minutes I felt horrified at my omission and got her name from my wife determined that next time we met I would make an effort to communicate.
You need to find a way for him to experience some of what you're going through and how hard it is. It won't help with explaining the word finding problem but how about getting him to talk to you with marbles in his mouth (like they used to do to train stammers) and then you can be extra critical and impatient when he doesn't speak clearly. But if he's not sympathetic to the issue I suppose he wouldn't agree to this either.Have you tried recording a message for him explaining what he's doing and how it makes you feel. If you can write it down and get a friend to read it for you.
One thing to try might be Relationships Australia. Sometimes having someone outside the situation to talk things through with and get advice from can help. You can access their services as a couple, or you can go on your own, and see if your husband might join you at some point. Their website lists all the local phone numbers and has a contact form if you prefer to approach them via email.
http://www.relationships.org.au/
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