Rehab, Rehab and Rehab = is my Rehabilition

jan's journey
jan's journeyon Thursday, April 7 2016
3 Comments

18 years on and I am still healing.

18 years today I suffered my first stroke and then a second stroke four days later. Both were located each side of my cerebellum base - I believe they were Haemorrhagic Strokes.

I have worked hard over the years setting many small goals in an aim to reach my bigger ones. I have done a lot of things, and tried hard to stay motivated. I have achieved much over this time and feel like I have come so far. When I look back I realise how slow recovery is – like a snail – but this how it is. I always knew my recovery was going to take a long, long time.

My first year was spent in The Geriatric Rehabilitation Services at the Cairns Base Hospital, I thought that if they can help ninety-five year olds then I must have a chance at fifty years young!

 

It took a very long time to walk, and I had problems speaking, I could only say one word at a time, and it took me three years to be able to say even a small sentence.

Eighteen years on I have volunteered, was an ambassador for Leukaemia and in the RFDS Spirit of Queensland and

Secretary for Cairns Tourism Awards in Excellence for Customer Service - all this has helped me to keep my depression at bay.

 

At the moment I am back on a Rights in Action management committee which advocates for people who are vulnerable with disabilities. This is marvellous as I use my work as my own ‘brain games’ session. Learning how to collate, filing, using photocopying and many other tasks, work my brain.

 

I have found volunteering huge in my recovery. It has been a boon for me, and has become vital in my recovery as it keeps depression at bay, and keeps me MOVING. Which has helped my confidence and to not feel isolated.

I have made sure that I never ask ‘why me’ – at least not often, and I do not feel sorry for myself, which is important to me as I recognise many other people are worse off.

 

I am still getting better, I know my resistance is not the same, and a lot things I cannot do. I know my brain says I can but my body says no!

I realise that I will never be able to jump puddles, and I don’t need to as I have fun splashing in them. I give life an extra try because none of us know what is around the corner. I like it that way - thank goodness I like surprises. Some tasks I have to do over and over to get right, it might take a week, a month or a year, and I’ll keep trying.

In this phase of my recovery my motivation is to help others, I want to share what I have learned over the last 18 years. It gives my life meaning, and motivates me to keep improving too.

I now get to look after husband whose health is not the best, and I have a family who loves me. I give credit and thanks to the many (many) people who’ve helped me get to where I am today. I am very thankful, that I have roof over my head and a belly full of food. I may not have much in money but I am rich in many other ways – I am happy.

3 Responses

Wonderful Jan, may I share your blog on our Facebook page too? 

D

Hi Jan, as a speech pathologist it was great to read your story! You have been so self motivated in your recovery and I love that you described your volunteer work as your own 'brain training'. More and more we are finding that actually getting out and doing things like that is effective for improving language and memory. I think we as rehab therapists need to get better at supporting people to drive their own recovery like you have- hopefully we are better than we were 18 years ago but I think we have a way to go. Thanks for sharing!

Yes Diana, Sorry a bit slow about getting back to you have had a sick husband.

 

Jan xxx

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