Restenosis after Carotid Stenting

Belinda
Belindaon Saturday, December 2 2017
5 Comments

I had a left-sided stroke in October last year as a result of a 90% blockage to my left carotid artery.  My symptoms at the time weren't overwhelming, but I knew that something wasn't quite right and that I needed to be attended to fairly quickly (left-sided facial numbness, loss of speech and right hand/eye movement coordination).  I had a stent placed in my carotid artery and was watched for a few days post procedure before coming home to a familiar but different world.  I've been recovering from various cognitive issues with most of my problems being associated with short term memory loss, information recall, concentration, fatigue, emotional lability along with some panic and anxiety.  I found that after a year whilst these things had improved, I still have some difficulties particularly when I'm tired or anxious  As I'm aware of this, I tend not to get too wound up about them otherwise I could probably make things appear a little more challenging than they are.  I've had regular Doppler ultrasounds of my carotid arteries and so far have been quite happy with the results.  I just received news though that my last Doppler has shown a greater than 80% increase in blockage in the left artery (the one that had been stented).  Now I am in the process of waiting for an urgent appointment for a carotid angiogram before further discussion with my Neuro/Radiologist Intervention team as to where we will go from here.  I am not good at waiting at the best of times (I'm sure they'll organise things ASAP) but in the meantime, I am feeling a little anxious as the current blockage is almost at the same level as my initial block pre-stroke last year.  Generally speaking I seem to be asymptomatic until something actually happens which makes me feel somewhat vulnerable and fragile at the moment.  I am aware of the possible procedures available to remove the current blockage (re-stent, endarterectomy, medications, etc.) and must admit I fear the possibility of another stroke whilst undergoing any of these.  My family and my husband are all being wonderful as usual, but sometimes being told not to stress about things can be a little annoying given the possible outcomes and previous experiences.  I usually take situations on in my head, work through things and look at various options and allow myself to feel any initial fears or nervousness before I get back into "right - let's get on with it mode."  Just thought I'd share how I'm feeling at the moment as this is one of those situations that can make you feel fairly isolated when it comes to communicating with loved ones and friends who haven't had these experiences or fears before.  I really appreciate this site and am greatly comforted to know that the people here are all familiar with the good stuff and the more challenging things that come with being a stroke survivor.  Thanks for listening...    Belinda

5 Responses

Hi Belinda,

 

If you want to chat further with someone, the StrokeLine team are great listeners 1800 787 653.

 

Diana 

Hi Belinda,

so my stroke a was also caused by a clot in my right carotid artery, and I to had a stent put in, however when I returned to hospital three months post stroke the stent and my artery had completely closed up. This messed with my head massively, subsequently I had massive anxiety issues as I always believed the carotid artery to been one of the main arteries for blood flow throughout your body. But the doctors weren’t worried at all and I have continued to live a “normal” life if there is any such thing

Hi Emily..., thanks for your response.  It has been a little challenging of late trying to deal with anxiety regarding this latest blockage.  I guess because I am now aware of what could happen given my previous stroke and lack of symptoms until "the wheels fell off" I probably haven't dealt with things as well as I usually would.  I have an appointment made for the 20th December, so I'm thinking (or at least everyone keeps telling me) that it can't be that urgent if I've not been attended to immediately.  I've done a little more medical research reading (I've worked as a Medical Secretary most of my life) and have noticed a number of different approaches being taken these days, so I guess I'll just do my best to remain calm until they decide what (if anything) needs to be done.  Like yourself, I always thought having two functional carotid arteries was the ideal situation, but apparently a lot of people manage with less than full functioning arteries.  Thanks again, for replying - always nice to hear from someone who understands where you're coming from.  Belinda

Hi Belinda,

i had a similar experience with my catroid right side being 100% blocked but I had a two experiences where I got a massive headache & my right eye was like a blind came over it. On the second occasion We went to the doctor & she sent us to emergency. They did a CT scan but not a vascular!

Six months later I woke up on my Husbands birthday , I was 56 now 59 , & I had no vision in my right eye.

After trips to eye doctors & hospitals a opthomologist send me for a dobler test. I couldn't have an operation because of the risk, now I check every 12 months to see that my other artery stays at 25% blocked.  I know how you feel with it hanging over your head, especially that yours has blocked up again so quickly, I am very aware of not having saturated fats, well I have cut them down drastically! 

There is so may other little side effects that people don't realise, even down to emotions, I wish you all the best on the 20th . 

 

Tanya 

Hi Tanya, oh myyyy, did your vision come back or do you still have some difficulties..?  I only noticed in hindsight after my stroke that I had had a few episodes of very high blood pressure (ignored it - stupid me) a headache that lasted nearly a week, but not as nasty as a migraine and some pulsatile tinnitus in the right side that would literally keep me awake at night (it was seriously loud, not the usual soft whoosh, whoosh you sometimes get).  Anyway, other than those three things I had no symptoms before the stroke itself.  I was surprised with my recent Doppler results given that the results prior to these were fine - I thought initially (pre-stroke) that I'd probably gathered some crap in my arteries over many years, so wasn't particularly expecting any build up over such a short period of time after the insertion of my stent.  Anyway.., another few days yet until I have my CT angiogram done - I have been fairly nervous when I've had to be out and about by myself, but seem to have calmed down for now (sort of).  Thanks for sharing your story with me - I'll let you know how we go next week and what's decided as far as any actions are concerned.  So thankful for this particular forum and website - don't feel so alone with all of this stuff.  Thanks again.  Belinda

 

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