I am currently in hospital waiting room with pain in my right calf , it's probably a bite . But with my health history ,anything a bit suspicious like a possible DVT , I just want to be sure... So I don't tend to need to talk about my health history much , but when I am asked and I speak honestly - a stroke at 22 after having eclampsia I say it calmly and without any emotion , yet I always get a drop jaw look and a repeat of my words followed by the "any residual affects? " question. I say no , but I know that's not how I see it. My world changed , my husband's world changed , we have so many blessings yet the journey has been so hard at times. A residual affect has been the emotional journey that followed the physical recovery , the grief and loss. But I said no , no residual. How do others manage this delicate question ,and I know I'm probably fragile cause I just want to go home ! Sue
Hi Sue, thanks for asking this question, it is a very important one, and something we discuss a lot in Facebook.
There are not many conversations about it in enableme yet, although there was a discussion about emotional lability that you may want to read here.
I hope that you get a conversation started.
Diana
Sue your question about residual problems post stroke hit the spot for . I have many however the major one has been emotional lability. Three years post stroke I can handle it without anti depressants, the feelings are there but do not overwhelm me. With help I now have ways of managing them. In hospital I was very emotional over anything. A very astute nurse was aware of my problem and sought help for me. The emotional recovery has been more difficult than the physical one. I have learned to be up front and determined to seek answers with residual affects from the stroke. My medical team work hard with me. I appreciate their efforts.
Sue don't be hard on yourself if you feel fragile, to have survived 22years post stroke to me is remarkable and indicates your strengths. Jenny
Thanks to Jenny and Diana for responding to my post . I can let you know that my diagnosis for that visit to hospital ended up to go see your Dr. If concerned . So I saw her the next day and was put straight on antibiotics for cellulitis. No DVT.
And yes it has been a journey of survival. At age 22 when I had my stroke now I'm 45. The past rears itself at times, and I always gain strength from knowing I am not alone.
Sue I am pleased you have a answer to your concerns. Jenny
Sue I like this response. It came up on the radio the other day when they were talking about outcomes from the bushfires and someone objected to the usual phrasing of the report of "zero casualties" after the fire that wiped out Wye River. Their position was there may have been no lives lost but there were still going to be ongoing impacts from the fire. in terms of PTSD etc. so the report should be "zero physical casualties"
So you have "no residual physical affects"
