Join the campaign for life after stroke - Global Bill of Rights for stroke

Peta
Petaon Thursday, July 9 2015
2 Comments

The National Stroke Foundation has joined the global campaign to respect the health rights of stroke survivors and carers and give everyone a better chance of life after stroke.

At the heart of this campaign is the Global Stroke Bill of Rights. The document developed by World Stroke Organization, in partnership with stroke survivors and their carers, promotes the rights and aspects of care that are important for ALL stroke survivors. It sets out the right of each person to:

  1. Receive the best stroke care
  2. Be informed and prepared
  3. Be supported in their recovery

Globally one in six people will experience a stroke in their lifetime. 17 million people experience stroke each year and for more than 6 million individuals that stroke will be fatal. Many survivors are left with short or longer-term disabilities and stroke is now the leading cause of disability worldwide. In Australia there are an estimated 420,000 stroke survivors and around 65 percent of survivors are left with an ongoing disability. Of these survivors around 80 percent are currently not having their needs met.

It is time that each and every individual behind these global stroke statistics has access to all the elements of appropriate stroke care, so that everyone has the best possible chance of life after stroke.

With the help of the WSO, National Stroke Foundation is calling on the government to rise to the challenge and ensure that the Bill of Rights is fully supported and implemented.

The Global Stroke Bill of Rights was developed by a group of stroke survivors and caregivers from each region of the world, including Australian John Damrow. Their work was informed by input from thousands of others from different regions, countries and cultures who completed surveys saying what they thought was most important to stroke recovery. The document sets out priorities for all aspects of care and recovery and is intended to support individual patients and caregivers in their direct discussion with professionals about their own treatment and care, as well as to provide an advocacy tool to raise awareness of the impact of stroke and improve the services and information they receive.

National Stroke Foundation is working to ensure that the Global Stroke Bill of Rights is reflected in the treatment and care provided in Australia.  You can show your support for the Global Stroke Bill of Rights and join this and other World Stroke Campaign initiatives here at The website provides Bill of Rights documents in a number of languages. For more detail on stroke in Australia visit the Stroke Foundation website

2 Responses
Doug Young avatar
Doug Young

By far the worst consequences that can befall a stroke victim who doesn't have an Enduring Power of Attorney in place is that a evil kangaroo court (QCAT in Queensland) can decide the victim is 'incompetent'. Note that its ridiculously easy for said kangaroo court to decide a victim is non compos mentis but a command performance is involved in getting a victim clear of the clutches of the kangaroo court. Typically a determination of non-capacity results in the victims affairs being MIS-managed by cohorts of the kangaroo court the Adult Guardian and the Public Trustee. The best that can be said about the Adult Guardian is that its inept beyond imagination and the Public Trustee fully deserves every possible criticism and condemnation. PT staff are unbelievably arrogant, totally incompetent and will go to great lengths to ensure every red cent in assets is squandered on fees and legal expenses. A common dirty trick is to arrange a shonky ACAT test so the victim can be parked in some disgusting institution where they are surrounded by terminal dementia cases, their home flogged off cheap to a friend of the PT with the proceeds invested in some invariably loss-making scheme. More often than not, by the time the victim realized they are being conned there is nothing left. To date the parasites have made good use of stringent privacy regulations to limit communications between victims however a significant number are now in regular contact and developing strategies to bring members of the troika to account.

Doug Young avatar
Doug Young

I've recently realized what is the motivation to turf victims out of their houses. Seems the Public Trustee bottom-feeders can't charge MIS-management fees in respect of a victim's residence although they can inflict whatever fees they like for other property / investments. Bearing in mind that a significant percentage of PT staff have legal degrees (which is a completely different thing than being a practicing lawyer), the concept of wearing the costs associated with a task that can only cost time and money is anathema to those bloodsucking parasites. Enter the occupational therapists (a weird profession for an ostensibly 'financial' entity) who tell all manner of 'interesting' stories to gain entry to the victims home where they get the info needed to file a shonky ACAT report. Next step is to consign the victim to a cheap and nasty nursing home hundreds of kilometers from their friends so that the home can be flogged off to a friend of the PT, with any proceeds squandered in fees and charges.

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