We have recently discovered some very interesting information on the reason for 'some' strokes, possibly relevant to all bleeds. Improvements in MRI resolution over the past year allow far higher definition scans, and in the case of my partner, what was initially thought to be simply a spontaneous bleed was found to be cerebral amyloid angiopathy. CAA has traditionally been diagnosed during autopsy, which isn't much use to live victims. It is uncertain how many bleeding strokes are really CAA because as we've discovered, many neurologists don't understand how to diagnose the reasons for a brain bleed. To be fair, a standard CT scan often doesn't show any more than a big blob until months after the event, and the waiting time for an MRI scan rules it out for most victims. The view that CAA is rare prevails although without MRI, there is no definitive test. In all probability, a lot of CAA-related bleed cases die without anyone knowing any more than they suffered a non-specific brain bleed. Presently even neuorologists who are aware of CAA tend to tell their patients 'there is no treatment', although that is not strictly correct. After considerable research, we put together a team of specialists who have significant experience, albeit experimental at this point, but which appears to be at least holding the CAA at bay.
If anyone who is experiencing repetitive bleeds is interested in exploring further, contact me on 0488531824 / brizzie@live.com and I'll provide details of our experiences / professional contacts. Note that my partner is otherwise physically fitter than the proverbial Mallee bull with no significant residual disabilities, consequently she is a perfect candidate for research into CAA. I understand that people with multiple medical problems may not be considered 'suitable candidates' although the decision on whether or not to treat them will be made by the appropriate professionals.
