The End

Sally
Sallyon Wednesday, June 13 2018
11 Comments

Hi my son had a massive stroke on 20th December 2015 and spent through Christmas and New year on life support. He was 44 He managed to come through it but had major issues to overcome, learning to talk and eat as well as his hearing and perception had changed. He was also hemiplegic on the right side of his body. He had short term memory loss as well.  He spent 8 months in hospital and eventually was able to go back to his home but with carers.  Life was very difficult for him and he hated being dependent on people for the most basic things in life.  We fast forward to Christmas 2017 and he became unwell and spent the whole of Christmas and the new year in bed,  things improved but then in feb 18 he had a funny turn and became very unsteady and slurring his words he went to the hospital but they said he was alright, he started to improve and was more alert and would laugh if I asked him what was wrong.  Then on March 6th he started drooling really bad and kept slumping in his chair. We took him back to the hospital and he was admitted as suspected stroke.  He had a fall the first day in there and from that point on his condition deteriorated.  He spent 6 weeks in that hospital but they kept on telling us he hadn’t had a stroke but he had lost all of his fine motor skills and was unable to even roll over in bed and was totally incontinent. 2nd fall was a senior nurse put him in a cloud chair and then left him in his room unsupervised he fell out of it ct scan done they said no damage.

Another two weeks later an agency nurse was feeding him the evening meal and then left the side of the bed down while she left the room for at least and hour and the kitchen staff found him face down on the floor bruised face and shoulder broken nose another ct scan done.  Two days later he was found unresponsive in his bed, he was transferred to icu but he never regained consciousness 24 hours later he passed away from they said a massive stroke in an area of the brain that had been unaffected by the Previous stroke.

 I am angry, upset and totally devastated by this turn of events it was his birthday five days after the stroke. I feel the hospital and the system has let us down badly he never should of had 3 falls in a six week period.  He was in a stroke ward so where is their duty of care.  Similar things happened when he was in hospital after the first stroke.  He had a number of falls from staff putting him in a wheel chair or cloud chair and leaving him unsupervised.  His speech was affected from the stroke so he was just a nuisance to them as he needed help to even have a drink but they would complain about him when he would try and get one himself and would spill it or drop the container. The staff are busy he would ask for a drink or for his pad to be changed and it was always yes I will come later when someone else comes on shift or it’s handover so dont be so impatient but how would you like laying in a dirty pad for hours the pee stain on the sheet had dried up and he absolutely stunk of urine and faeces.  

We were there every single day and stayed there 8 - 10 hours a day seven days a week so we could help him but i was worried about him when we weren’t there.  I hope I never have the misfortune to spend anytime in that hospital.  Well thankyou for letting me have my say even though I was probably rambling a bit.

Now if somebody can tell me how do I learn to live without my only son. Heartbreaking to lose your child even though he was 46 he was still my boy.  Good luck to everyone else that is on this merry go round and I hope your recovery goes smoothly and you have no further damage 

11 Responses

Hi Sally,

I am so sorry to hear what happened with your son, it sounds like you have had a very traumatic and difficult experience.

Please know that we are here to support you. You can contact our StrokeLine team of health professionals on 1800 787 653 or alternatively you can inbox us directly with your number and we can give you a call.

Our StrokeLine team can also debrief with you over your hospital experience and advise upon the complaints process if this is something you are open to.

The loss of a loved one to stroke, particularly a child can be very lonely and painful. GriefLine is another service that supports individuals whom experience loss.  They can be contacted on 1300 845 745.

 

Thinking of you,

 

StrokeLine

Sally what a sad time you are going through and you wonder how you can live without your special son who had suffered with strokes under difficult circumstances. Enableme will always be here for support

when you need to talk. I notice you had called stroke line, a positive move as they provide  professional support. Jenny

 

Hi Sally

Am sorry to hear of your lose, was of about the same age when I had my first stroke and consider myself lucky to be here, by telling your story you have become part of the system of making people aware. The system has holes in it, that requires evidence for others to act on and that evidence is always available. Becoming part of the system is sometimes the only way to help people in simalar situations, bless you.

Hi Sally

Not sure if I can edit and should have put evidence is NOT always available

Cheers

Hi Sally,

 

Thank you for trusting EnableMe with your son's story.  I am very sorry to hear of everything which you have described, it's so important to find safe spaces to do exactly this - let it out, find way's to follow up on what has happened and feel supported in this.

 

I am sorry for your loss.

 

And much respect for your son through his needing to suffer.

 

Regards

Sue

 

 

Oh Sally, words can;t convey how sorry I am for what your son had to experience, your loss and the continuation of that for yourself.

EnableMe is a great place to share your thoughts and emotions...there's no judgment just support and a sense of knowing there are people out here who will listen.

If you feel like it, you can make a complaint to the Medical Board of Australia regarding your son's treatment.

Take care, Toni

Hi Sally, I'm so sorry to read about your son & his ordeal. I can't make it better but I had a stroke when I was 48 after complaining about feeling unwel to 4 different doctors, 3 from same clinic. It was caused by bacteria after a minor operation & not enough medication or follow up. I had my stroke alone at home & wasn't able to get help for 23 hrs so too late for any medication to reduce affects of stroke. I was admitted to a stroke ward via casualty & had to learn to talk, swallow, write & walk. Then into a rehab ward to continue the hard work. I was left on the toilet by a trainee nurse until my legs went numb even though I was pressing the emergency button whist on the stroke ward. I was also left so long I dirtied the bed even after pressing button in plenty of time. I'm non functional on right side, have some memory problems, easily fatigued & words escape me sometimes. Add to that the Doctors found that I had a leaky Aortic valve, was in Congestive Heart Failure & had Pneumonia all at the same time. 1 year after stroke I had major open heart surgery to replace valve which set my recovery back. Now,14 yrs later, my valve is passed it's use by date & I'm looking at another heart op in maybe 2 or 3 years?

    I felt that I'd been let down by doctors that wouldn't listen to me & it only needed a blood CULTURE to show the correct problem & I wouldn't have had the stroke. I spoke to a Lawyer, they thought I had a case & 8 yrs later, we settled out of court. The good part was that every doctor I named had a blemish on their records for ever! 1 actually quit. The other good part is they'll think twice next time someone says "I'm ill" & will treat them properly.

    I've written more than I intended & am tired so I hope it makes sense & was of some help? It was a long, hard road but if you decide to take it you must keep going & find a lawyer you trust. I think there's a time limit too so have a chat sooner rather than later.

    Wishing you all the best & good luck,

    Julie 

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