Hi Linda,
I’m so pleased you’ve made such a positive physical recovery, it sounds like you put in a lot of work. Well done! Your story is not uncommon as many stroke survivors focus on the physical aspect of recovery in the early stages before addressing the emotional. Mood changes are common after stroke and can occur in up to two thirds of stroke survivors. There are a number of options to consider in relation to improving your anxiety and depression. It is helpful you are seeing a psychiatrist and other specialists.
You might like to start with our fact sheet and our resources on emotions and personality.
You may also find these two booklets from Beyond Blue useful. They cover everything from psychology to yoga and acupuncture with notes on the evidence and safety.
A guide to what works for anxiety http://resources.beyondblue.org.au/prism/file?token=BL/0762
A guide to what works for depression http://resources.beyondblue.org.au/prism/file?token=BL/0556
There are many in the stroke community who can comment on here about what they personally find helpful. Remember, everyone is different and there is no one size fits all approach. We would suggest a holistic approach from looking at your diet (yes what we eat affects our mood), exercise, mindfulness and seeking support with a psychologist or counsellor. You may find journaling, art and music therapy useful and there are promising studies around the benefits of yoga and mindfulness meditation too.
We would be very happy to give you more tailored advice if you call us for a chat on StrokeLine on 1800 787 653 (Mon-Fri 9am-5pm AEST).
Best wishes,
Simone (Occupational therapist for StrokeLine) 1800 787 653
Thank you for your reply Simone and yes hoping I get heaps of ideas from other survivors. I have the Beyond Blue books as well as Happiness Trap, The Grain Brain and follow up and so many other books I have enjoyed reading. Music therapy in hospital I loved but at home it is just listening to music. Most nights I go to sleep listening to mindfulness music. Before my last admission of two months I had built my walking up to just over an hour a day , however since being released have had procedures and legs are like cement and no walking so far. Like went to bed feeling so happy and with plans for today, woke up feeling so sad so worthless and not wanting to do a thing. Interesting to hear what has helped others Thanks
Oh Linda it sounds like you are doing all of the right things. Be kind to yourself and practice lots of self-compassion and self-forgiveness on those average days. I find the saying/mantra "this too shall pass" is very helpful during challenging times. Not beating yourself up for having a slow day is key. I recall a great conversation on here about acceptance I will find the link in case you haven't seen it. I imagine it must be such a balance for you. If you ever need to talk to someone, particularly on the down days we are available on StrokeLine Mon-Fri 9am-5pm and there is also Beyond Blue 1300 224 636 and LifeLine (24 hours) 131 114.
The other thing I'm yet to try but I believe are extremely therapeutic are the mindfulness colouring in books. Keep doing the things that bring you joy and on the days not much brings you joy keep breathing and hang in there. Journaling first thing in the morning to get all of your htoughts out on paper can be helfpul, have you tried this? Please do call us if you wish to chat as I may be able to offer other suggestions or a more personalised response.
Thinking of you,
Simone
Hi Linda,
It isn't directly related but here is a great conversation covering acceptance which I think is key in the often bumpy journey of recovery.
Please do call if you need a chat.
Simone
The sudden changes of mood are not unusual for stroke victims. I have not had the serious problems you are facing but I can understand how one can go to bed full of targets and optimism and wake up with a 'It Won't Work' syndrome. My solution is music, but I am a musician and to pick up a guitar and just mess around with it gives me a change of mood. I've got to admit that it doesn't always work, sometime the guitar makes the mood deeper but at least I am holding something I can retaliate with.
I'm not sure my reply has made sense! I know what I mean but may not have expressed it well.
Regards
Deigh
Hi Deigh. Yes I do understand your comment. Thank you for taking the time. I was thinking of taking up the piano again. But then that is another expense or try learning a language. The thing is I get tired of living a life to try to improve n not living a life for me. Lucky to have managed to put a ppositive in my day the last few days so hoping if continue to do that things will improve. Thanks to all comments
Mindfulness and ACT (acceptance and commitment therapy) can help - best to discuss with a psychologist or neuropsychologist. May be helpful where CBT fails.
Cheers, I am actually starting a DBT course early New Year. Hoping this is very usefull, sounds interesting. I was hoping someone had actually tried light or cold therapy.
Hi Linda , I have just read your thread of seeking alternatives for your current treatment for all the exhausting emotional affects of your stroke. I am a survivor of a major stroke to which I always acknowledge the emotional recovery was a journey of all you are describing. And all the responses, in there own way are worth exploring. For me mindfulness and visualization with a solid one physchologist were the most helpful. I did need medication occasionally and the words which always followed me around which I saw somebody post to you , be kind to yourself. Also writing , writing helped heaps , my words no interruptions.
It's hard isn't it , its hard work. I wish you all the very best and stay safe.
Sue
Thanks for your support Sue and yes it is hard. This part of my recovery is so relentless and exhausting. 2016 might have all the answers. We can only hope.Linda
Hi
in addition to the support from my GP and psychologist I found hypnotherapy really beneficial as a complimentary therapy. It helped draw out triggers that I wasn't consciously aware of and then I could discuss those in my psych sessions.
I tried to look into hypnothreapy but it was very expensive. Did you find a reasonable hyhypnnothreapist?
Hi Diane and others who may be interested,
There are many psychologists who are also qualified hypnotherapists. By doing a google search with ‘psychologist, hypnotherapy and your area’ you should be able to find a psychologist who can include hypnotherapy within your sessions. This way you could access Medicare rebated sessions on a mental health treatment plan.
I hope this helps,
Lisa - Social Work student for StrokeLine 1800 787 653
Hi Linda,
I'm not sure when you first posted here; I'm on an iPad and I cannot see any dates mentioned, but I'm guessing 2015. I hope things are improving for you.
My stroke was in 2012 also and whilst I haven't had the experiences you are going through to that degree, I can certainly relate. I also have some non-stroke related stresses going on at present and I really need to keep myself calm. That's not always easy to do, is it?
Reading through all the posts I gather money is perhaps an issue so you really need to find something inexpensive. Certainly look for any Medicare rebated therapy as Lisa suggested. There could be a study going on somewhere you could participate in (not sure, just putting it out there!). All the usual meditation, mindfulness, colouring in... I meditate and find it useful. I'm not into colouring but have recently gone back to jigsaw puzzles. A friend who is a therapist and who mostly works with children with behavioural, anxiety issues etc gets them doing jigaw puzzles and other quiet activities to classical music and I do that too.
As for light ready, what about sunlight therapy? Sounds a bit simplistic but getting outdoors, getting into the sun, helps me tremendously. Weeding is good for anger or anxiety!! I haven't been able to do much of that post stroke as I haven't been able to bend my Stoke leg
Whoops, pressed Post..!
...haven't been able to bend my stroke knee until recently to kneel and weed, and it's still not good. I find I'm actually missing being able to weed, strange as that may seem to some.
Walking outdoors is good however I havent until recently been able to walk far. I still get out, though, and do what I can as movement, sunlight and fresh air are all incredibly beneficial. Vitamin D is important, do you take that or had your levels tested?
All the best.
This iPad I'm on is auto correcting and I cannot go back and edit (a good feature to have, Admins!). Up above I meant light therapy, not light ready.
I hope you can find something that works for you, Linda.
Great suggestions Maree. Vitamin D, getting outdoors and doing things we love is so important. I will pass on your comment about editing functionality to our team. We are always working to improve the site so thank you for your feedback.
Simone - StrokeLine
Thanks for all your comments. I have been in and out of hospital and trying to deal with family concerns, I have not been on here for a long time. I was potting around with pot plants n weeding, however the chronic fatigue is consuming me. Oh hoping for some answers as after so many tests, they have found out I have imbalance issues in my inner ear area n have been booked into a balance physio. Only taken 4 4 years of hell so my fingers r closed that this special physio will be able to assist with my left n right crossed central balance n left preiferhal goes walk abouts.
Hoping this will improve sleeping all day n most of the night. Thanks everyone
Hey goldysdaughter,
The next podcast we will be releasing is going to be on fatigue, it will be out early next week, I will post a link here.
There is also going to be a group chat opportunity - stay tuned for more - it will all be explained in the next newsletter.
Diana
Hi goldsydaughter,
It is good that you've got a diagnosis for your balance issues and are now getting the right treatment. Keep us posted as to how the physio goes. It would be wonderful if that helps your fatigue too. The podcast Diana mentions and the live chat would be a great resource for you. Don't hesitate to call us on StrokeLine for support or more information.
Best wishes,
Simone (Occupational Therapist for StrokeLine)