Hello Gordon
I am so sorry to hear of the difficulties you have been facing. It sounds like you have researched and trialed a great many options already. Not being able to sleep though the night can impact on the rest of your daily life, let alone when it has been happening for so long.
It can be common after a stroke, to report changes in bladder or bowel control. These issues can be caused by muscle weakness, changed sensation or feeling, and difficulty responding to the urge to go.. It sounds like your situation is a little different but can be attributable to similar causes.
I don’t know if you have come across the Continence Foundation of Australia’s webpage. They provide a great deal of information on a range of issues, and might be able to suggest some options for you that you haven’t already tried. You can also contact the National Continence Helpline on 1800 33 00 66 to speak with a continence nurse. they might be able to suggest other options for you to try.
If you haven’t already it might also be helpful to speak with your doctor about a referral to a local continence nurse regarding a bowel regime that might help better manage the bloating at night, and allow you to have a comfortable night’s sleep.
There are some other options that might also help you, so if you’d like to reach out and give us a call on StrokeLine, we can discuss these in further detail. You can call us on StrokeLine on Ph. 1800 787 653 and we are here Monday to Friday 9am to 5pm AEDST.
Kind regards
Siobhan (StrokeLine)
Hi Gordan,
Here are some more answers from the community:
Shane Robb Try some melatonin tablets. I refuse to take sleeping tablets. Melatonin is made from natural herbs. Found they work for me, I had a stroke 12 mths ago and have had trouble sleeping. Took about 2 weeks for the capsules to start to kick in, I know a few work colleagues who take it as well due to PTSD helps them, Expensive if prescribed by a doctor but you can get it online cheaper. Was initially prescribed by my GP to try.
Belinda Greenslade I'm 5yrs post and survive off 4hrs p/Night. Simply chose not to do GP recommendation for sleeping pills as I'm now a single mum of 7yr old twins. Each to their own but I can't afford to zonk out without backup. Never done drugs in my life I'd probs turn into sleeping gorgeous
Ryn Shell Sleep on your left side. This due to the position of your stomach opening. Try ginger tea. Store ginger in the frezer and grate what you need to make a tea with whatever other tea mix you choose, as required.
Jeanette Spencer Have you tried drinking a glass of warm water with lemon. Its meant to help with digestion.
Joanne Ashby Lactose free yogurt works
Dave Lark Try cbd oil
How do you get fixed?
Over two and half years since my stroke.
Same bloating problem as before, only more painful when I wake stupidly early to fart. The constipation is every day. A colonoscopy was scheduled in March last year (2020), but Covid made a mess and 10 months later I am still waiting.
About once a week I’ll call Lifeline or Beyond Blue because the pain is too intense ( the fecal builds up in the lower colon until it presses against the spine ). I need to speak for the last hour before I poo - but both Lifeline and Beyond Blue give up after 20 minutes as I’m not planing on killing myself. ( I have children! Get real. I’m just in pain ). Hospitals send the phone call to emergency when you are in pain. I just need some help when it hurts.
Two questions.
Where can I call when I am in pain?
Is there a care regulator? Someone that cares after you have left the hospital and you have a chance of fixing all of your stroke stuff.
Yes I have a continence nurse, had abdominal x-rays, bladder was checked, two other doctors waiting for my colonoscopy and I am on a priority listing.
But I’m not bleeding. There is a backlog of Melbourne health staff after Covid and just not enough health professionals in this country. So I’m waiting.
Hello Gordon,
It sounds like you are having a difficult time and yes, pain is very difficult to live with , you must be so frustrated to try and find both an answer and a solution for the ongoing issues you are experiencing.
The colonoscopy that you have been recommended to have and are waitlisted for may certainly assist you with some of your answers. Are you seeing a Gastroenterologist for this investigation?
Have you also considered seeing a Dietician?They can be very helpfull with looking further also into any dietary related matters that could be contributing to your bloating , constipation and pain.
In relation to a care regulator ,post hospital discharge there is no such thing, a follow up appointment is often completed via the stroke outpatient team or registrar. Then any ongoing care needs post stroke are often referred to your GP or neurologist for ongoing medical care management
Kind regards
Alicia(Strokeline)