Chris,
Some more comments for you:
Jennifer Davenport
I am 12 years on from my stroke but I have only slight vertigo which I take medication. Does your neuro offer you any medication to ease this vertigo and the stress it causes you ?
Other than that all I can offer is keep on keepin on its worth it.
Sending hugs
Kane Brad Tracey
I had a haemorragic stroke affected my left side,10yrs ago ,I am 44 & feel exactly the way chris does,it’s very stressful,i had cranioplasty replacing part of my skull bone,which they removed when my brain swelled from the bleed,to stop the pressure & death.The neurologist has done many tests & cannot explain the vertigo or dizziness i have(can’t shop in places with high packed shelves,crowds) everything spins & makes me clostraphobic/anxious . Can’t garden or do things with my head down for lengths of time.Can’t stay balanced to bike ride. Neurologist tells me ,it’s the damage caused to my nerves & the ones that are trying to regrow,they have been through the worst trauma & may stay the same forever but may regrow & strengthen,that there hasn’t been enough research in the live brain,to know, but in 10yrs it seems its only worse for me. I have avoided physical exertion due to the blood pumping feeling in my head with all chris’s symptoms. I still have sensory issues ,numb feeling bottom of left foot ,fingers & if anything is nearby to brush into,it’s very hard,i have tried acupuncture,it helps when its regular,a good hard massage & walking. I have had to live with the frustration & depression of not getting everything back to normal & had to stop being so hard on myself. We’re our own worst enemy.The vertigo sick feeling still gets me when i’m parked in a middle rd paralel park,a car pulls in & i think my cars moving backwards for a couple of minutes.Seeing all the stroke sufferers worse off on this group also helps. I am just trying my best every day,thats all we can do,being here in any capacity is better than not at all. I wish we had a magic wand for back to normal in a short time. I’m past worrying,looking almost all normal ,but not feeling it, can consume you,if u let it.I wish for a quicker smoother recovery for chris
Tara Webb
Are you based in Melbourne? There are specific oto neurologists who specialise in dizziness. They are attached to a clinic at the Alfred, but see private patients too. My mum is seeing one. There are lots of different treatments, including medications. PM me if you want more details. Good luck, as I know vertigo can be a horrible problem post stroke.
Bella Jasmin
Hi Chris my vertigo was so awful I would throw up each time I moved my eyes (I couldn't see either). It takes time unfortunately, it took years for me to get the point where I did not need medication to control it.
The point of vestibular therapy is to trigger your vertigo to that tipping point. Don't overdo it, and sleep afterwards.
Jasmine Anne
I had vertigo once and yep the exercises made me vomit but after It was gone. Might just have to push through the gross feeling of the exercises as i think it's always going to gross if u dont do them. Sorry Chris
Yana Jade
It is the most horrible feeling. I have developed vertigo since my stroke, it make me feel sick and fall over or stumble around. I can’t be a passenger in the car. Check out The Vertigo Doctor on Instagram. She is based in the US but has helpful tips. The most groundbreaking thing I learnt from her is that vertigo is a symptom, not a diagnosis! You can desensitise your brain to these symptoms. I’ve been seeing a physio that specialists in vestibular migraine and they can help manage the symptoms and get rid of the vertigo. Good luck.
Zoe Jayne Anderson
A vestibular physiotherapist can definitely help! Try a quick google and see if there is one in your area?
Fiona Hitchins
I've had Benign positional vertigo for 32 years and found out last year that physiotherapy can sort me out when I am so bad I can't walk. I was in the hospital and the physio sorted me out! I was stunned!
