Hi Bec,
Thank you for reaching out to us on EnableMe. I am sorry to hear about your sister, it must be a challenging time for you all. It is good to hear that she has made an incredible physical recover and is making some improvements with her speech. Similar to physical rehabilitation, the recovery of speech and communication works on the same ideas about practising and repetition to create changes in the brain. There are a number of different types of communication difficulties following stroke. There are a number of different ways to help her depending on what the underlying difficulty is. It is best to speak to Lou’s Speech Pathologist in the first instance for tailored advice. Requesting joint sessions with the Speech Pathologist to teach you techniques and tips can be really helpful if Lou is agreeable.
Here are some other helpful resources:
It sounds like Lou is lucky to have you as a support. Please don’t hesitate to give us a call on Stroke Line 1800 787 653 to discuss her speech and communication further or other supports. We have a team of health professionals who can help you and your family navigate this journey.
Warm regards,
Kath, StrokeLine
Hi Bec, I’m so sorry to hear about your sister Lou. I had a stroke caused by a carotid dissection and then started having TIA’s. This was in my early 40’s (quite a number of years ago), my carotid dissection was caused by Fibromuscular Dysplasia. My speech was very affected at the time, have you spent time with Lou’s Speech Therapist and asked them for guidance.
At the time my family asked me if what they were doing was of help, I really appreciate being asked, especially as I felt like I had lost control over so many things that were happening to me at the time. There are some great speech Apps that may be of help, Lou’s Speech Therapist should be able to tell you which ones would be more suited to Lou and may be of help, and they may have other practical suggestions. Everyone is so very different in their recovery, my speech improved significantly (although I have my days when finding my words can be challenging) I hope that Lou’s continues to get better.
Wishing Lou, you and your family the very best, let me know if I can be of any help.
Brenda
Hi Bec,
Here are some other comments from the Facebook community.
Tracy: Lots of conversation. Work out what works for them. Carry a diary and note book and a pen wherever you go and google is now your very best friend. Find an aphasia group and a Speechie that gets your goals. Be prepared for a long road.
Colin: Keep background noise to a minimum and concentrate on what she is trying to say, be supportive if she has to repeat something, I've just had a friend stay here for a few days, and I found myself repeating things 3 or 4 times because he'd ask something and be elsewhere mentally, he nearly left here in a box, never been so frustrated in the previous 5 years as until then
Nyree: I can only speak from my family's experience - please watch closely for signs of depression. Stroke victims with speech language difficulties often experience depression in the months post stroke. Therapy is a must but monitor mental health as well.
Vanessa: Above all be patient. When I had my stroke a little over 5 years ago the best thing my friends did for me was to have a normal conversation with me and patiently wait for my answer. Sometimes that answer felt like it took hours to come out but in all reality it didn’t, it just felt like it from my side. The patience and understanding really helped. I still get stuck for words. I know the meaning of the word but can’t remember the word itself. I have one particular friend that I still message or call and start the conversation with “what’s the word”. This started whilst I was in hospital and has continued on. It is good to have that level of support from someone who has seen you through the toughest time of my life and is still supporting me today. Good luck and I wish your sister a speedy recovery.
Barbara: Hi - I was 49 last year and had both types of strokes and a seizure. I found practicing as often as I could helped. It gets tiring though in the beginning. Speech therapy gave me a lot of word puzzles and games and exercises where they read you a paragraph and ask you questions. Talking with my son (14) was good because it was relaxed. Even trying to read was tiring in the beginning.
Jenni: Flash cards and get her to stick her tongue out as often as possible. Helped my Mother regain her speech.
Matt: Hopefully she has a speech pathologist on hand for the specifics, as mentioned already, it’s practice practice practice.
Take the exercises they give and do them as often as instructed. (Don’t let her beat herself up if she misses one or two here and there but the real progress is made in between sessions with the therapists.)
If she’s concerned that something’s not working or she can’t get a handle on part of the program, ask about it as there may be a different way to work the problem.
Progress will likely come in fits and bursts too, the important thing is to give it time and not get discouraged.
Jenny: Work on understanding her for now. Encourage her to use gestures, pictures and facial expressions etc You can't force the speech, it will come when she is not too stressed or tired. Don't ever pretend you understand her-that is very frustrating for the patient.
Rod: After my stroke in December 2015 I found early on it helped me to record a video of myself talking to myself. I’d replay it to see how my speech was going and re record and play it again. It took a while to get used to looking at and listening to myself but eventually it became a little easier and I started to notice improvements in my speech. Importantly when you get tired or fatigued stop and rest. No progress if fatigued so rest up and start again later. I also found it useful to send video messages to people instead of texts as I could get the communication going again which took the focus away from a feeling of isolation. Whatever you decide to do make sure you get plenty of rest. That’s probably the single most important part of recovery. Good luck.
Ali: If she’s stuttering at all on words or gets stuck with pronouncing get her to stop and maybe change to another word the stuttering is not good habit and playing scrabble is great.
Debra: Even 4 years later I can’t sound out the one or 2 words that I want to say so I then think of another word. It can very frustrating but just accept that’s what I have to do
Jasmine: I just don't shut up haha breath support important though an slowing down speech helps, exercises daily, always just keep trying. Technology
Hi Bec,
Your sister's speech problem may be called aphasia. Go to www.aphasia.org.au to find out what that it is. I am Chair of the Association and we are here to help. The Aphasia Software Finder website https://www.aphasiasoftwarefinder.org/ is the best unbiased and most comprehensive list of apps and therapy software for the language problems of aphasia. Many are free.
Learning how to adapt your own communication style will help her best too. The best source of information about this is through the Aphasia Institute in Canada https://www.aphasia.ca/communicative-access-sca/ or the University Colllege London site called Better Conversations for Aphasia https://www.ucl.ac.uk/short-courses/search-courses/better-conversations-aphasia-e-learning-resource
All aphasia groups in Australia are listed at https://aphasia.community/current-groups
Let me know if you need more information.
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