Hi Jeff,
Here are a number of responses from the Facebook community too.
Eleanor Horton I can only offer support for what others have said. I was told 19 years ago to put my partner into care at 52 years as he would not live for long. His life is not perfect but he is happy and listens to a lot of audio books etc. He has different abilities now which if he was in care I don’t think they would have developed. Best of luck and we have always been members of a stroke support group which you may find helpful.
Christine CJ Owens Jeff, if you are in the USA and your brother is in the USA DM me as I am in Los Angeles and my brother is in a similar situation in Melbourne. The NDIS has really helped him and I have augmented this support with some practical, albeit long distance, little things that are making his new life meaningful and with a new purpose. I use personal technology on his iphone and ipad to provide self-guided therapies. My brother is also hemaplegic (left-side), young and in full-time care. Mirror therapy continues to be a big help.
Cjb Bee My wonderful mum had a stroke at age 64. She went into rehabilitation for 6 months and then went to a nursing home. She wasn’t happy. So my sister and I decided to care for her ourselves - it was incredibly challenging but she was happy. We attended day rehabilitation and made some progress - seeing her walk a few steps again was amazing. It’s a hard road but just do what you can and work with as many professionals as you can. We put together our own team of trusted and talented professionals - wishing you and your brother all the very best
Helen Holley You could also look out for a facility that does have regular or private physiotherapist so that you could have them transferred there.
Karen Caddis I know how u feeling ,my boyfriend had a brain stroke , spent 3 months in hospital 5 months in nursing home till he had. Seizure then hospital 6 months , I push him to come home , so now full time carer he in a wheelchair and slowly staying to talk, can't move right side so sorry to hear but reading stories , they can get better ....
Julia Ramsbottom My husband had a brain stem stroke in 2017. He was doing really well and then it all went wrong about 5 months later. He couldn’t walk anymore and was weak and regressing badly. After a lot of further tests and ruling out another stroke he was diagnosed with PSP-Progressive supranuclear palsy, last September. It never ever hurts to get second opinions or asks questions and push for further investigation.
I care for my husband full time and will always do so. Maybe see if there is any way he can be cared for with assistance in the home, or with a willing family member. We get OT and physio in home as required. It can be done, with support.
