After stroke I would just like to know what I should be doing in preparation of the future.

Hi Maz,

We are sorry to hear about your husband’s diagnosis of Cerebral Amyloid Angiopathy (CAA) and the challenges you both currently face.

Changes in thinking, personality, mood and relationships are common following stroke. Is this something you have discussed with your husbands GP or stroke specialist? It would be worth considering a referral to a psychologist, neuropsychologist or occupational therapist to explore strategies. The following organisations will be able to provide additional support for you both: 

• Carers Australia have many great resources and they offer free counselling over the phone for carers. Ph 1800 242 636

• Relationships Australia also offer counselling. Ph 1300 364 277

Although we are aren’t able to provide advice specific to CAA (we would suggest discussing this with your husband’s specialist), we do suggest following general stroke prevention advice to lower his overall risk of further strokes. This includes exercising regularly, eating a healthy diet and monitoring his blood pressure and cholesterol.

Is your husband receiving any other rehabilitation aside from speech pathology? If you haven’t already, it would be worth discussing his rehabilitation goals with all therapists involved in his care. This would be a great way to keep your husband motivated and focused on his strengths and activities he enjoys.

Hopefully other stroke survivors and their carers will share their own wisdom with you and what has helped them. 

Don't hesitate to call us on StrokeLine 1800 787 653 if you would like to further support, advice or information. 

Best wishes,

Simone and Lisa

Hi Maz,

My mother has just been diagnosed with CAA following a Intracerebral Haemorrhage in November. It was a particularly bad stroke which required two emergency craniotomies. She will remain in hospital for many more months and is due to commence inpatient rehab shortly. If possible I would love to talk (by email or phone, or whatever suits best) about your and your husband's experience. I am nervous for what the future holds and I am struggling to find good information on what to expect.

Looking forward to hearing from you,

Max.