Glenys McLaughlin
I had my third stroke in 2017. Fatigue is an ongoing issue that needs to be managed with self-compassion. I struggled until I accepted that I can no longer do what I used to, and I developed an energy budget that outlined where I’m going to spend my energy in any given day and week. (Like a financial budget, only for your energy instead of money.) The energy budget helps be to avoid continually ‘overdoing it’ - which I did for the first few months - and helps me to be mindful about my life choices. I have limited energy and I need to ‘spend‘ it wisely.
Cheryl Whitlock
Hi Paul...I had a stroke and brain haemorrhage 6 months ago...the fatigued at first was chronic but it is slightly better now. You won’t be able to do the things you once did probably for quite a while, maybe never again but on the other hand many people recover very well. It is a whole new world after a stroke and there’s nothing else to do but just ride it as best you can. Don’t overdo it...don’t push yourself....you absolutely must rest to heal your brain and it might take a long time. We are on property too with animals, farm crops and a nursery ....the work never stops but I choose my health over everything now...there’s no point making yourself get sick. I believe after a stroke you are never the same person again. Good luck with it all 🙂
Sue Buxton
Nearly 6 years since my stroke, mental fatigue still a problem, better than at the start but very frustrating. My speech and memory are affected with my fatigue. Everyone is different, you shouldn’t compare yourself with others and likewise others should not compare/judge you . You are you and no one else. Good luck with your recovery
Cassandra Watson
My Dad is called Paul too, he had a massive Stroke in 2015 & still suffers major fatigue, however he's learnt to live with it & be ok with now having naps in the day & allowing a break or rest if he knows he has something coming up. He also and us as his family, have learnt to schedule things in the morning/lunch so the arvo's are free for him to nap without feeling like he's missing out. It's a struggle but just keep yourself surrounded by support & loved ones and it'll make the journey easier
Karen Bayly
I think fatigue is as individual as other impacts of stroke, depending on area of damage and severity. For many of us fatigue is very long lasting, but for most things improve over time as we find strategies to rest more and prioritise available energy to thins that matter most to us. In time many stroke survivors can do the things we want to do the most, but we can't do everything at once, and learn to live with the knock on crash impact.
Rishana Smith
Mate, fatigue will be ongoing issue, my hubby post stroke nearly 13yrs still suffers with it. Do as much physio n ot you can do, even do exercises at home, i had hubby at the hydro pool twice a day n all the exercises i could get him to do. He went back to work in the mines as a diesel fitter n the boys really looked after him, until Aug 1 2017 when he started having stroke related seizures and still continues to have them, he has now been forced out of work n is now unable to do so anymore. Just listen to your body, if you are tired, go rest, do not overdo it as it will hurt you later on. Always listen to what your body needs, everyone is different, so take the advice given, but ultimately make your own decision that works for you. Goid luck mate, always here for a chat x💚
Rachael Louise Davis
Firstly, the entire stroke community is with you Paul! Your brain and body has gone through a traumatic time and will heal at its own pace. I am just over 3 years post stroke and fatigue is still my number 1 challenge. Some days I have endless energy, then other days I can barely stay awake past 9am and wonder how ill get through the day - I notice these days my memory/cognitive processing is worse when I’m battling fatigue. Just take your time, take small steps and try to rest as often as you need and go at your own pace! We are all with you Paul! 😉
Jayne Lewis
Hi Paul, my husband had a massive stroke in 2015. The first 12months were the worst, he slept more than he was awake. Each year has gotten better. Now he never sleeps during the day and can be out and about all day going places and doing things. It is hard to feel reassured at the start but people told us time does help and it really has been true in our case. Be kind to yourself xx
Gordon Albrecht
With me I had my 1st CVA at 3 years old, and severall major CVA's and many minor CVA's since my short term memory is practically gone, and it is what I call " goldfish syndrome ", I become distracted easily, what my brother/carer calls my "Oh look, bright shiny things". But in all seriousness, do as much as you can, do not overdo it, and if you do not finish the jobs you have set out to do today, their is always tomorrow.
Joanna Rose
Hi Paul, I'm five years post stroke and still battle fatigue daily. I have learnt over time to rest as I need too and also to try and spread appointments or activities out as best you can. I find sometimes I need a complete days rest if it's been a busy period. I'm still trying not to feel guilty when I just can't do anything but you know you have to listen to your body. Take good care and be kind to yourself. All the best
Alison Hurding
One year in ...fatigue ( and light headedness) lessening but still an issue - find that if time allows make yourself have a 'power nap' a minimum of once a day even if you don't feel tired .. learnt from experience this helps....try and break down things into much smaller goals and take achievable small steps -lot less stressful 🙂
Lastly I personally find if something is new and complex ( movement or mentally) dont have distracting music etc etc initially ( found this out in early rehab - brain far less stressed/ tired with less input to cope with )
