HI Chris,
Thanks for reaching out to the Stroke Foundation through EnableMe.
I am sorry to hear about your stroke, and some of the difficulties you have been having with your memory.
Unfortunately, what you are experiencing with your memory can be common post stroke, but there are lots of different avenues to help and it is great that you are being proactive in wanting to help yourself.
A diary is a great tool to start with if you are not already using one. A diary is beneficial for everyday orientation to day, date and month as well as appointment keeping, and scheduling of any home exercise programs.
A mobile phone can also be useful for setting alarms and phone reminders.
Your phone, iPad or computer may be a great resource to download and trial some free memory apps.
Some of these you may wish to trial for free include- BrainHq, Peak, Lumosity and Elevate
Brainteasers like sudoko, word searches, crossword puzzles, checkers, chess and card games can be fun and stimulating for the brain as well.
If you haven't already done so, i I would suggest connecting with a neuropsychologist.
A neuropsychologist can help with memory, thinking or behavioural problems.
A neuropsychology assessment may be required to establish a treatment plan or to provide further rehabilitation recommendations. You can ask your GP for a referral.
Additionally, you could link in with an Occupational Therapist. They may also be able to work with you to discuss practical strategies and tools to assist concentration, thinking and memory. If you are not currently linked with an OT, have a chat with your GP about getting a referral.
Here are some additional resources that may provide further assistance.
https://enableme.org.au/en/Community/Podcasts/Memory-loss
https://enableme.org.au/Resources/Psychology-and-neuropsychology
https://enableme.org.au/Resources/Thinking-and-Perception
https://brainfoundation.org.au/healthy-brain/
Some public hospitals in the community setting and Universities may also offer memory skills groups or clinical trials that offer input from Occupational Therapists and Neuropsychologists that may be worth looking into depending on your locality.
I hope this information proves useful.
Feel free to reach out with more questions or concerns.
We can be contacted at StrokeLine on 1800 787 653 (Monday-Friday 9am-5pm AEST) or strokeline@strokefoundation.org.au
All the best,
Alicia (StrokeLine)
Hi Chris,
Here is some advice from the community which you may find helpful:
Bryan Brown
I am 5 yes post stroke and have lost all feelimg in my face fingers and hands.Through my Rehab team o I'd a picture book with instructions anQuestionAnd exercises to make the memory work better
I had pretty bad Brain fog for about 3 1/2 years all up so keep working hard with every thing.It takes an action to be repeated about 400 times to become a habit so that is learning time. Every day still gives me a challenge of some sort but I am still here.
Tracey Lang
One day at a time Chris and get yourself a good note book and write things down. Your still healing so don't get disheartened. I had my stroke 14 yrs ago and some days my memory is really crappie and I get really tired here and there but I just go with now and I stopped being angry about it.
We are here we are safe don't rush things becuase you'll get there
Katrina Jasper
Hi Chris, my husband’s neuropsych suggested cooking from recipes as a really good cognitive rehab activity for my husband.
Jazmin Elyse
Hi Chris, have you seen an OT specialising in cognition and memory? It might be a good place to start.
Helen Young
It's all very normal. One simple thing that helped me was simple knitting. It's a regular pattern and keeps the brain working in a regular rhythm.
Floss Blanch
I'm 2.5years out from a stroke. Thank goodness for alarms on phones and just starting to learn samsung notes on my phone for shopping lists. I was forever loosing them when I went to town. Use list making when doing things. Sometimes we need to embrace our new normal. Hopefully it will become better.
Suzie Henry
Hey Chris unfortunately nothing is our normal after stroke .. it’s all new and scary ..and frustrating .. not sure where you located but once it touch with the rights teams they can make things a little easier and help understand what’s happening. The stroke foundation helped linked me with hunter brain injury and they where amazing
KMichelle Bay
Give yourself time Chris. Everything will feel better in time. Try downloading free Lumosity on your phone to see if you like it.
Yana Jade
I couldn’t write, so a notebook was useless. I make lots of lists on my phone in notes, put everything in my calendar with reminders, many alarms on my phone and I tell lots of people to remind me, just repeating it to someone else helps me. I’m 2 years on, whilst my memory has improved a lot I still use all these things to be able to function day to day. It helps take away the mental exhaustion from trying to remember everything else. Your brain is still recovering, don’t overload it and don’t be too tough on yourself!
Jasmine Anne
I haven't been affected by memory loss, but 3months on yes feeling lost definitely normal. Write journals, lists, follow a scheduled routine set reminders every 10mins if you need to. Your emptiness feeling won't last forever.
Emma White
Speech path here. I just wanted to let you know that I feel really uncomfortable about a speech path, or any allied health professional, telling you ‘look online’. My advice to you, and any stroke survivor, is that it’s ok to shop around to find professionals who ‘get you’. You deserve to feel supported, and it doesn’t sound like you do right now. Lots of great recommendations here. Good luck on your journey, you’ve got this.
JLadybug Washington
After 9 years my biggest piece of advice is to get a notebook / planner / journal... and keep notes on paper...stop try to remember stuff....write stuff down til you need to recover from "memory"...once I learned I can't remember everything... I stopped being frustrated.....I looked online and found word games (Quordle. And others..... And anything that made me think.or made me concentrate or focus)........rest and renew with plenty naps...
Suzanne Hateley
Chris everything you are experiencing is normal. I kept a journal and even though early on my writing and memory was not great I could feel and see how I was progressing with each day which was encouraging in itself. I did word find puzzles, and because I loved cooking I read and followed recipes so I was physically and mentally working out. Fatigue is very real and when I felt that I would cat nap to replenish myself even setting alarms to help me out. Let yourself feel all the overwhelming emotions and don’t hide them from others who don’t fully understand it’s not good to bottle them up or to try and tough it out you just end up more exhausted. You’ve got this and plenty of us here to support you. One day at a time, one step at a time, one thought at a time.
Catherine Pender
Rehab HQ on you tube is great. Physical exercises snd ingo on neuro plasticity etc. Hang in there, it gets better
Caitlin Tozer
So normal, but different for everyone. Lists, calendars and remembering to use the calendars (written or digital) was the biggest help for me. I am now 7 years out running a business from home with a turdler as I will never be able to work a “normal”’job again with the fatigue and I gotta tell you there are days, weeks or months I fall apart and still forget to write/use my lists. The more tired or over busy I am the worse. At the the start learn to slow down. It gets easier I promise to regroup. I am not a reader but reading and relearning things basic like paying bills etc helped me immensely. And practice everything. Even crossing the road. Good luck.
Peg Fisher
My husband had his stroke 6 years ago and yes gets frustrated by not being able to remember things to , he is now 81 and fixes toys from our daughters kindergarten and child care centres keeps him active and he works out ways to fix things , he has had many TIAs but we just get on with life and enjoy our lives
Adrian Tornquist
It’s been 10 mths since my stroke and memory loss is a pain at times, but it is not real big deal for me, it’s just certain things in life are missing but it’s mainly things from many years ago, forgetting we’re I put my keys going to shop and coming home with everything but the milk that you went to get, I just put down to old age , but I do get frustrated with speech and I have to stop deep breath, and slow down and then it comes naturally , it’s just exercise , 1 1 is fine but in a group of friends family and you are all talking and laughing that gets difficult, but my family and friends no this and all stop and say that’s ok deep breath and it’s ok, so my advice is just don’t worry about the little things that you forget, and if you feel you can’t get the words just deep breath slow down, true friends and family understand , enjoy
Janet Dare
My memory and being able to organise a house and a husband who has Alzheimers is driving me crazy 18 months later and no one has offered any help,advice or therapy.
I do word puzzles but this is all and as a retired RN, I feel totally lost.
Joel Daniels
Hi Chris! Brain fog and memory loss is normal.. even for people who haven’t stroked.
I’ve been in taxis and the driver didn’t even know left from right… so don’t stress
I don’t even remember what I did this morning along with thousands of other people.
2 x brain exercise apps I played whilst in early days recovery where ‘impulse’ and ‘Woodoku’ these will make you think
Try eat plenty of red and green fruit/veg and take vitamin B tablet plus fish oil capsule’s everyday. Don’t drink alcohol it’s poison to your brain especially in first 12 month recovery. Instead try drink 2 litre of water!
All the best and grateful you’re still here with us. What a blessing
Duncan Mitchell
Sorry to read about your stroke, it can happen to anyone at any age. Things do improve with effort. There are a few 'brain training ' apps which can help improve short term memory. Also to help compensate I use my phone constantly for reminders, maybe I rely on that too much but I feel it's necessary for me. Also you could try things like puzzle books, that type of thing can help as well. The emotional impact will knock you sideways and cones in waves when you least expect it but as a friend of mine said, 'just try and ride those waves' you'll come out the other side. I find reading helps as well but it tires me out. Keep fighting and researching, groups like this help enormously. All the best survivor.
Nicole Harper
The early months are the hardest absolutely. Amongst everything the Neuro fatigue is crippling. Finding your new normal is overwhelming. Give yourself time, self care and rest! Allow extra time to do things or schedule only 1 activity a day or long breaks. Get yourself somewhere quiet and dark to desensitise from external sounds/ sights if you can.
A neuropsychologist can help provide some memory techniques to use. I tend to use my phone for notes for every little thing, taking photos of items are useful and I use alarms (like for cooking prompts like “.preheat oven” “take out of oven” etc
Going to something like a Doctors appointment I use my iPhone notes for this too. This is useful also as you can search for any general key word you can retrieve all notes associated yo easier find memory prompts.
If I have a meeting at work I ask for topics that will be discussed so I can prepare my responses in advance so I don’t forget something important or get flustered.
Being organised helps too. Every night I lay out exactly what I need for the next day so I don’t forget things. I’ll also leave a large sheet of paper on top of my keys for a memory prompt. Allow plenty of time to do things as if you rush your brain will get more confused
A great tip I learnt from a neuropsychologist was that the brain likes novelty. For example if you are trying to remember a name or place assign a silly word association to it like if you meet a lady named Sarah who smiles a lot “smiley Sarah”
Importantly too brain likes repetition. I tend to have a very regular routine I follow each day
As mentioned I recommend you see a Neuropsychologist if you can as they can do a full cognitive assessment (which also gives techniques to help you work around yhings) It’s been invaluable for me and also my work who have adjusted things to help like starting and finishing work earlier as the brain is fresh earlier in the day
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