A-LISTS follow-up service co-design

Australian Stroke Clinical Registry – LIfe after Stroke with Tailored Support (A-LISTS)  


Many people living with stroke have ongoing disability and report extreme problems in different domains of quality of life up to six months following stroke. Of concern is that the majority have also reported that their long-term needs are unmet two years after stroke.

We are seeking your help to co-design a supplementary follow-up service for people registered in the Australian Stroke Clinical Registry (AuSCR) who report extreme problems or unmet needs within three to six months of stroke.

This information is provided back to the AuSCR Office via a survey the registrants complete. The information is also accessible to stroke clinical staff from the participating hospitals with access to the AuSCR database. Currently, we are unsure if the survey information is used to inform clinical practice.

Why we need your help

You are invited to take part in an online survey to help inform the design of the follow-up service. The study has been funded by the Medical Research Future Fund and is being conducted by a collaboration of universities and hospitals, led by The Florey Institute of Neuroscience and Mental Health.

We are inviting people with lived experience of stroke, caregivers, or people who work in a clinical role with people that have had a stroke.  The survey takes approximately 30 minutes to complete.

To help you decide if you wish to participate, you can find detailed information about the study and what is involved in our Information Sheet (DOCX 162 KB).

Please take time to read all the pages before you decide whether or not you wish to participate. 

If you are not interested, you do not need to do anything. 

If you want to participate, please complete our survey.


For more information

If you have any queries, please do not hesitate to contact:

Professor Dominique Cadilhac
Phone: 03 9035 7032
Email: dominique.cadilhac@florey.edu.au

or the Project Coordinator Andrew Ross
Phone: 03 9035 7067
Email: andrew.ross@florey.edu.au