Lived Experience Advisory Committee members for the Allen Study: exploring stroke survivors' lived experiences

Who it’s for: Survivors of stroke, family members or carers
What it involves: Join a research team
Where: Online (Australia) and in-person NSW


Researchers from the University of Technology Sydney are seeking three (3) lived-experience partners to join the Allen Study Advisory Committee.

The Allen Study aims to explore the health, health care use and health behaviours of adults living post-stroke over a long period of time. The study will provide an opportunity (in partnership with those with lived experience) to help inform effective support and care and ensure the health and well-being of those living following a stroke.

Find out more at the Allen Study website.


  • Lived experience of stroke as a survivor, carer or family member;
  • aged 18 years or over; and
  • able to read and understand English.


Being a member of the Allen Study Advisory Committee will involve attending meetings and providing input, reflection and advice on study design, progress, procedure and decision-making.

  • Meetings will be held 2–3 times per year and will run for 1–2 hours.
  • Regular breaks will be included during meetings.
  • Pre-reading will be kept to a minimum, anticipated as no more than 30 minutes per meeting.
  • Meetings will be held on-site at the campus of University of Technology Sydney, Ultimo, NSW, where possible. Members may also join meetings online.


Jon Adams
Distinguished Professor of Public Health, School of Public Health, University of Technology Sydney
0404 933 790