The Real Price of Health: experiences of out-of-pocket costs in Australia

Who it's for: Survivors of stroke, family members or carers
What it involves: Interview
Where: Online (Australia)


Researchers from the College of Health and Medicine at the Australian National University are examining people with chronic illnesses’ experiences of managing the costs of health care and medicines.

Despite Australia having universal health insurance, out-of-pocket costs for healthcare and medicines are often high.

This study will explore how people experience paying for certain health services or medicines. It will also describe the choices that people make, which reflect the value they place on aspects of their health and life.

The outcomes of this research will be used to inform Australian health policy and improve the equity of healthcare financing in Australia.

Visit the project website for more information


If you live with a chronic illness, or are a carer or family member of someone living with a chronic illness, you can read more about the study and complete some questions that will explore your eligibility to participate.


Participation involves an interview that may take about 60–90 minutes. If possible, the interview will be conducted face-to-face at a time and location that is convenient for you.

If face-to-face interview is not possible, it will be conducted online via Zoom or Webex. The research team will ensure you have access to the required technology before the interview takes place.

If you speak little or no English, the research team will conduct your interview using the Translating and Interpreter Service (TIS National).


Participant information sheet (PDF 274 KB)


Associate Professor Jane Desborough
Telephone: 02 6125 6545