Some strokes are very severe and the person may die as a result. Palliative care is specialised care and support for people who are nearing the end of their life. Palliative care aims to achieve the best possible quality of life for the person and their family.
Palliative care includes physical, psychological, social, emotional and spiritual needs. Palliative care aims to provide relief from symptoms, pain and stress. Families and carers also receive support from palliative care services.
Palliative care can be provided in hospital, in an aged care home, in a hospice or in your own home.
Many people prefer to receive palliative care at home. Whether this is possible depends on the person’s medical and care needs, and how much support is available from family and services.
People who are nearing the end of their life may need to move between places. This may happen if their medical and support needs change.
For some people, end-of-life care is provided by their treating team. Other people, particularly those with severe or complex needs, may be referred to a specialist palliative care team.
A palliative care team may include:
The care provided will be based on individual needs and personal preferences.
If it is possible to receive palliative care in your own home, the specialist palliative care team will work with your doctor and with community services.
They will talk to you and your family about what care and support is needed and help arrange these. This may include:
You, your family and carers are important members of the team that will plan your end-of-life care. It is important you are given all the information you need and are involved in decisions about your treatment.
It is important to talk with your health professionals about the care you would like to receive. This will help make sure your wishes and needs are met.
As part of your care, your health professional may talk to you and your family about using a medical power of attorney or an advance health directive. Your health professional may also talk to you and your family about organ donation if it is a possibility.
StrokeLine’s health professionals provide information, advice, support and referral. StrokeLine’s practical and confidential advice will help you manage your health better and live well.
Call 1800 STROKE (1800 787 653).
Email strokeline@strokefoundation.org.au
Join Australia’s largest stroke community for information and support.
EnableMe: stronger after stroke
enableme.org.au
Palliative Care Australia’s website has information and links about palliative care and other resources.
palliativecare.org.au
Download the Palliative care after stroke fact sheet (PDF)